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State Profiles

NORD has increased its involvement in state-based policy matters in order to ensure that patients are able to access the treatments the rare community has fought so hard to get developed and approved. NORD recognizes that now more than ever, the cost and availability of health care services for patients with a rare disease is dependent upon state-based policy decisions.

This is welcomed news, as it means national goals are closer to benefiting patients at the local level. However, it also means that the rare community is increasingly dependent on the earnestness with which their state implements better policies.

2023 Rare Disease Day

Visit your states profile page and see if there’s a RAN event happening near you.
Don’t see an event in your state? Hosting an event? Please visit to learn
what other events are happening around the country or to submit your event.

NORD Links


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