NORD Rare Action Network®

State Ambassador: Jana Monaco

Jana is a mother and fierce advocate of two children with a rare disease. Her personal experience is the foundation for her advocacy for the rare disease community at the state and national level helping to increase and improve awareness, policy and access to care.

[email protected]

Events in Virginia

Virginia Rare Disease Council Meeting

November 17 @ 10:00 am - 12:00 pm

Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on...

Are there events happening in your State? Share your event Here

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Virginia’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Virginia.