Colorado
State Ambassador: Lily Emmanuel
Lily Emmanuel is a rare disease patient and advocate who first joined NORD in 2022 as a community partner with the Running for Rare program. She began advocating within her local community by bringing Running for Rare to the Denver Colfax Marathon and serving as the keynote speaker at the first Living Rare, Living Stronger Patient and Family Forum in Colorado, where she also received the NORD Community Champion Rare Impact Award. Lily is currently pursuing undergraduate degrees in Public Health and Integrative Biology with a minor in Spanish at the University of Colorado Denver, with hopes of bringing her lived experience and advocacy into a future in community-centered medical research.
Events in Colorado
Are there events for the rare disease community happening in your state? Email [email protected] to share your event with us.
