News
Youth Advocacy in Action: JJ Geeleher’s Impact on the Living Rare Forum
At just 17, Waukesha high school senior and NORD Rare Action Network (RAN) Ambassador, JJ...
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Living Rare, Living Stronger: A Day of Connection, Courage, and Community in Milwaukee
For one powerful day in Milwaukee, more than 110 people impacted by rare diseases —...
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Congress: Reauthorize the Rare Pediatric Disease Priority Review Voucher Program
First published July 23, 2024. Updated November 10, 2025 with new content and revisions. The...
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Recognizing National Nurse Practitioner Week 2025 – Roshani’s Story
By Roshani Kandel, DNP, ARNP, FNP-C, MPH About National Nurse Practitioner Week (November 9 to...
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Racing for Answers: Annie’s Journey to Raise Awareness for Acromegaly
Meet Annie – she’s passionate about the environment and is an accomplished marathon runner who...
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Senator Amy Klobuchar Joins Rare Disease Community at National Gathering
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders...
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NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research
Lightning round poster presentations highlight cutting-edge insights on issues ranging from Medicaid coverage disparities to...
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NORD Scientific Symposium Full Session Recordings Available Now
The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers,...
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