Find a rare disease event near you!
In this session, NORD staff will provide an overview of NORD’s volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you […]
The Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please […]
Advisory Council Meetings The Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email [email protected] for more information. You can find the upcoming meeting […]
Join the Branford Lions Club for Rare Eye Diseases: Awareness, Advocacy & Action, an educational program focused on rare diseases of the eye and their impact on individuals and families. […]
Advisory Council Meetings The Missouri RDAC meets virtually, and you can find additional meeting information below. Meetings Register for Public Comment: Any interested party shall be granted the opportunity for […]
You can find the Colorado RDAC meeting times linked below. Meetings
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings
Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in state government, and an opportunity to help shape policies and programs impacting the rare disease […]
Advisory Council Meetings The Indiana RDAC hosts virtual meetings, and additional meeting information can be found below. Meetings
Advisory Council Meetings You can find the South Carolina RDAC meeting times linked below. Contact [email protected] for more info. Meetings
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]
