Illinois Rare Disease Commission Meeting
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings
Events
Find a rare disease event near you!
12 events found.
Events
Georgia Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings
Webinar: Effective Lawmaker Engagement for Rare Disease Advocates
Building strong relationships with lawmakers is one of the most effective ways to advance rare disease policy and ensure the needs of our community are heard. The time between legislative sessions can be one of the most valuable opportunities to establish meaningful, lasting relationships with elected officials and their staff. During this webinar, we’ll teach […]
NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
Advisory Council Meetings The Missouri RDAC meets virtually, and you can find additional meeting information below. Meetings Register for Public Comment: Any interested party shall be granted the opportunity for […]
South Carolina Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings You can find the South Carolina RDAC meeting times linked below. Contact [email protected] for more info. Meetings
Colorado Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings You can find the Colorado RDAC meeting times linked below. Meetings The Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any […]
Hoops for Hunter Syndrome
Shoot Hoops. Raise Hope. Change Lives. Join Project Alive on July 19 for Hoops for Hunter Syndrome, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! Date: […]
Michigan Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email [email protected] for more information. You can find the upcoming meeting […]
Massachusetts Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Massachusetts RDAC meets virtually, and you can find additional meeting information linked below. Meetings
NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
Nevada Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times […]