Events

Find a rare disease event near you!




  • NORD Volunteer Meeting



    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]



  • Colorado Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings You can find the Colorado RDAC meeting times linked below. Meetings The Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any […]


    Hoops for Hunter Syndrome

    Shoot Hoops. Raise Hope. Change Lives. Join Project Alive on July 19 for Hoops for Hunter Syndrome, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! Date: […]


    NORD Volunteer Meeting



    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]