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February 2020
New Hampshire Rare Disease Day Advocacy Event at the State Capitol
Rare Disease Day Advocacy Event at the State Capitol Wednesday, February 19, 2020 from 11:00am-2:00pm New Hampshire State House, Cafeteria 107 N Main St, Concord, NH 03303 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with New Hampshire legislators the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their…
Find out more »Nevada Rare Disease Day 2020
Friday, February 21, 2020 Grant Sawyer State Office Building, Atrium, 555 E Washington Ave #5100, Las Vegas, NV. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Nevada. CLICK HERE TO REGISTER
Find out more »Colorado Rare Disease Day 2020
Colorado Rare Disease Day 2020 Presented by Colorado Rare Action Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax Ave, Denver, CO 80203. patients, families, caregivers, medical professionals and industry representatives at this important event to educate Colorado legislators on the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great…
Find out more »New York Rare Disease Day 2020 at the Capitol
Thursday, February 27, 2020 from 9:00am - 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day in the state of New York will be read on the floor. Please note, the time for the resolution hearing will be announced the week…
Find out more »Ohio Rare Disease Day 2020
Ohio Rare Disease Day 2020 Thursday, February 27, 2020 at 10:00a.m. Registration opens at 9:00a.m. Harrington Discovery Institute University Hospitals 11407 Euclid Avenue, Floor 2, Cleveland, Ohio, 44106 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in…
Find out more »Kentucky Rare Disease Day 2020
February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky Rare Action Network patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Kentucky.
Find out more »Connecticut Rare Disease Day 2020
NORD Connecticut Rare Action Network Rare Disease Day 2020 Friday, February 28, 2020 at 8:00a.m. -10:30a.m. Connecticut State Legislative Office Building, 300 Capitol Avenue, Hartford, CT Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut. CLICK HERE TO REGISTER
Find out more »Minnesota Rare Disease Day at the University of Minnesota 2020
The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m. McNamara Alumni Center, 200 SE Oak St, Minneapolis, MN 55455 Keynote: Sarah Wicks, JD, MPH Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns…
Find out more »MassBio Massachusetts Rare Disease Day 2020
Friday, February 28, 2020 from 9:30am - 12:30pm Omni Parker House, 60 School Street, Boston, MA 02108 The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. The event recognizes Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease. This year’s agenda will feature two…
Find out more »Georgia Rare Disease Day 2020
Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Georgia. REGISTER HERE
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