RareAction Network
Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events
In honor of Rare Disease Month, we are proud to announce our February exhibition, featuring the work of Peter Sonenshein, a Philadelphia artist living with familial dysautonomia. On Thursday, February […]
NORD Community Conversation: Building Awareness & Support Through Rare Disease Day Thursday, February 8, 2024 from 7:00pm-8:05pm ET In honor of Rare Disease Day on February 29, 2024, we invite […]
Friday, February 16, 2024 from 3:00 p.m. - 6:00 p.m. ACHE Research Institute Health and Wellness Center, 1000 Fianna Way, Fort Smith, AR 72916 Stripe Out Arkansas for Rare Disease […]
Pennsylvania Virtual Rare Disease Day Friday, February 23, 2024 from 12:00 p.m. – 1:00 p.m. This is a virtual event. Please join patients, families, caregivers, medical professionals, and industry representatives […]
Thursday, February 29, 2024 from 9:00 a.m. - 1:00 p.m. MetroHealth Medical Center (Main Campus), 2500 MetroHealth Drive, Cleveland, OH 44109 The event will be held in Rammelkamp Atrium and […]
Friday, March 1, 2024, 4:30 PM - 8:00 PM Nationwide Children's Hospital Education Center, Columbus, OH Credits Non-Physician Attendance (5.00 hours), Community Program Attendance (5.00 hours), Non-Accredited (5.00 hours) Overview […]
Dine-in or take-out at Michael's Tap Room in Bethel, CT on Monday May 6th between 5pm-8pm and a portion of the proceeds will be donated to NORD! Reservations are encouraged. […]
Adrenal Insufficiency United invites you to a live Zoom event with Lauren Kopsick, Founder and Executive Director of The Healthcare Navigation Project. She will be presenting “The Five Principles of Self-Advocacy” where […]
Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with […]
NORD Community Conversation Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child June 27, 2024 7:00 p.m. EST - 8:15 p.m. EST Virtual - Zoom Join us […]
Adrenal Insufficiency United and Danny's Dose are working together to present a Family Fun and Emergency Preparedness Event that will take place on Saturday July 27th from 10am-1:30pm EST at […]
