NORD’s Rare Action Network (RAN) holds the promise that together, we can influence decisions that affect the provision of quality, timely and equitable access to healthcare, services, treatments, and cures for rare diseases. To help drive the efforts of the RareAction Network®, NORD has a Rare Community Ambassador Program.
Volunteer Rare Community Ambassadors play a critical role in achieving that promise and helping to foster a community that is empowered to take action that further advances progress in research, policy, and care. They help lead outreach, engagement and empowerment activities that raise awareness, build community, and mobilize that community to advocate for change. They also help to connect families living in their state with valuable information, resources, and services that can support them as they navigate living with and caring for someone with a rare disease.
NORD RareAction Network® team is committed to our volunteer’s engagement and contributions to the rare disease community. We are devoted to providing a worthwhile and impactful volunteer experience through the Rare Community Ambassador Program.
To find your states current rare community ambassador please visit our State Profile Page