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Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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Pennsylvania

Pennsylvania Rare Disease Day 2019

Pennsylvania State Capitol
501 N 3rd St
Harrisburg, Pennsylvania

May 07, 2019 10:00 am - 2:00 pm

*NOTE: This event is in Spring 2019* Please join Pennsylvania Rare Action Network for Rare Disease Day Advocacy Event Tuesday, May 7, 2019 10:00am at the Pennsylvania State Capitol, 501 N 3rd St, Harrisburg, PA 17120. Patients, families, caregivers, medical professionals and [...]

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New Hampshire

Hoofbeats 5k

NHTI, Concord's Community College
31 College Dr
Concord, New Hampshire

June 01, 2019 9:00 am - 11:00 am

Join us for New Hampshire Rare Disorders Association's 3rd Annual Hoofbeats 5K to raise awareness of rare disorders! Satruday, June 1, 2019 from 9:00am-11:00am NHTI, Concord's Community College, 31 College Dr., Concord, NH 03301 This is a fun family event [...]

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Connecticut

CONNECTICUT PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP

The Goodwin Hotel
1 Haynes St
Hartford, Connecticut

May 03, 2019 8:30 am - 3:00 pm

PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Friday, May 3, 2019 from 8:30am to 3:00pm, Hartford, Connecticut. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to [...]

New York

New York Rare Action Network Meet & Greet

Guilderland YMCA
250 Wingding Drive
Guilderland, New York

May 18, 2019 10:30 am - 12:30 pm

Join the New York Rare Action Network on Saturday, May 18, 2019 from 10:30a.m.-1:00p.m. at the Guilderland YMCA for an opportunity to learn about our efforts here in New York state. Connect with other rare patients, families and supporters. You [...]

Arizona

Duck, Duck, Zebra! RARE DISEASE COMMUNITY AWARENESS EVENT

Arizona State Capitol, Senate Lawn
1700 West Washington
Phoenix, Arizona

April 25, 2019 11:00 am - 2:00 pm

Join rare disease patients, caregivers, healthcare providers, and the community in learning more about rare diseases in Arizona on Thursday, April 25, 2019 as part of the inaugural Rare Disease Community Awareness Event. Overview of the Event: During this “Duck, [...]

New York

New York Rare Action Network Advocacy Day

New York State Capitol
Washington Ave
Albany, New York

April 30, 2019 10:00 am - 2:00 pm

Please join us for advocacy day on the New York Rare Disease Advisory Council bill on Tuesday, April 30th at the capitol in Albany, NY! As you may know, a Rare Disease Advisory Council will give rare disease patients, families, caregivers, [...]

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