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Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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Oklahoma

Oklahoma Rare Disease Day 2019

Oklahoma State Capitol, 4th Floor Rotunda
2300 N. Lincoln Blvd
Oklahoma City, Oklahoma

February 28, 2019 1:00 pm - 3:30 pm

 Thursday, February 28, 2019 from 1:00pm-3:30pm Oklahoma State Capitol, 2300 N. Lincoln Blvd, 4th Floor Rotunda Oklahoma City, Oklahoma 73105 Please join patients, families, caregivers ,medical professionals and industry representatives at this important event to discuss the challenges rare disease [...]

Mississippi

Mississippi Rare Disease Day 2019

Mississippi State Capitol, West Wing
400 High Street
Jackson, Mississippi

February 19, 2019 8:00 am - 12:00 pm

Please join Mississippi Rare Action Network for Rare Disease Day Advocacy Event on February 19, 2019 from 8:00am-12:00pm at the Mississippi State Capitol, West Wing, 400 High Street, Jackson, MS 39201. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

Texas

Texas Rare Disease Day 2019

The Health Museum
1515 Hermann Drive
Houston, Texas

February 23, 2019 9:00 am - 1:00 pm

Hosted by Baylor College of Medicine/Texas Children's Hospital The 4th annual Rare Disease Day event will be held Saturday, February 23, 2019 from 9AM - 1PM at the Health Museum in Houston. It  will feature over 35 rare disease organizations [...]

Washington

Washington Rare Disease Day 2019

Washington State Campus, Spokane Campus, Room SAC20
412 E Spokane Falls Blvd
Spokane, Washington

February 28, 2019 12:00 pm - 1:00 pm

Please join Washington Rare Action Network for Rare Disease Day Event on February 28, 2019 from 12:00pm-1:00pm at the Washington State Campus, Spokane Campus, Room SAC20, 412 E Spokane Falls, Blvd, Spokane, WA. Patients, families, caregivers, medical professionals and industry representatives are invited [...]

Connecticut

Connecticut Rare Disease Day 2019

Legislative Office Building, 2nd floor Atrium
300 Capitol Avenue
Hartford, Connecticut

February 28, 2019 8:30 am - 11:00 am

Please join Connecticut Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 8:30am-11:00am at the Connecticut State Capitol Legislative Office Building, 2nd Floor Atrium, 300 Capitol Avenue, Hartford, CT. Patients, families, caregivers, medical professionals and industry representatives are [...]

Georgia

Georgia Rare Disease Day

Georgia State Capitol, South Wing
206 Washington St SW
Atlanta, Georgia

February 22, 2019 9:00 am - 11:30 am

Please join Georgia Rare Action Network for Rare Disease Day Advocacy Event on Friday,February 22, 2019 from 8:30am-11:00am at the Georgia State Capitol, South Wing, 206 Washington St SW, Atlanta, GA 30334. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

Arkansas

Arkansas Rare Action Network Patient Advocacy & Orphan Drug Workshop

Hilton Garden Inn West Little Rock
10914 Kanis Road
Little Rock, Arkansas

February 23, 2019 8:30 am - 3:00 pm

Please join us for a PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP February 23, 2019 from 8:30am to 3:00pm, Hilton Garden Inn West Little Rock, 10914 Kanis Road, Little Rock, Arkansas.  The National Organization for Rare Disorders invites all advocates to attend and participate in [...]

Illinois

Illinois Rare Disease Day 2019

The Inn at 835
835 South 2nd Street
Springfield, Illinois

February 27, 2019 10:00 am - 3:00 pm

Please join Illinois Rare Action Network for Rare Disease Day Advocacy Event on February 27, 2019 in Springfield, IL. 10am-11:30am: Breakfast and Advocacy Training Workshop at The Inn at 835, 835 South 2nd Street, Springfield, IL 62704.  11:45am-3:00pm: Legislative Visits at the Illinois State Capitol, [...]

Kentucky

Kentucky Rare Disease Day 2019

Kentucky State Capitol, Rotunda
700 Capital Ave
Frankfort, Kentucky

February 27, 2019 12:30 pm - 1:30 pm

Please join Kentucky Rare Action Network for Rare Disease Day Advocacy Event on Wednesday, February 27, 2019 from 12:30pm-1:30pm at the Kentucky State Capitol,  700 Capital Ave, Frankfort, Kentucky . Patients, families, caregivers, medical professionals and industry representatives are invited to attend this [...]

Maryland

Maryland Rare Disease Day 2019

Bernard W. Brown Community Center
629 N. Market Street
Frederick, Maryland

February 28, 2019 6:00 pm - 8:00 pm

Please join Maryland Rare Action Network for Rare Disease Day Advocacy Event on Thursday,February 28, 2019 from 6:00pm-8:00pm at Bernard W. Brown Community Center, 629 N. Market Street, Frederick, MD 21701. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this [...]

Michigan

Michigan Rare Disease Day 2019

Radisson Hotel Lansing at the Capitol, Banquet room, 2nd floor
111 North Grand Avenue,
Lansing, Michigan

March 07, 2019 10:30 am - 12:00 pm

Please join Michigan Rare Action Network for Rare Disease Day Advocacy Event on Thursday, March 7, 2019 from 10:30am -12:00pm at the Radisson Hotel Lansing at the Capitol, Banquet room, 2nd floor, 111 North Grand Avenue, Lansing, MI 48933. Patients, families, caregivers, medical professionals and [...]

New Hampshire

New Hampshire Rare Disease Day 2019

New Hampshire State Capitol, Cafeteria
107 N Main St
Concord, New Hampshire

March 07, 2019 11:00 am - 2:00 pm

Please join New Hampshire Rare Action Network for Rare Disease Day Advocacy Event on March 7, 2019 from 11:00am-2:0pm at New Hampshire State Capitol, Cafeteria, 107 N Main St, Concord, NH 03303. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

Minnesota

Minnesota Rare Disease Day 2019

Minnesota State Capitol, Rotunda
75 Rev Dr Martin Luther King Jr Boulevard
St. Paul, Minnesota

March 12, 2019 1:00 pm - 2:00 pm

Please join Minnesota Rare Action Network for Rare Disease Day Advocacy Event on March 12, 2019 from 1:00pm-2:00pm at Minnesota State Capitol, Rotunda, 75 Rev Dr Martin Luther King Jr Boulevard, St Paul, MN 55155. Patients, families, caregivers, medical professionals and industry representatives [...]

New Jersey

New Jersey Rare Disease Day 2019

New Jersey State Museum, Main Room
205 W State Street
Trenton, New Jersey

March 11, 2019 8:30 am - 3:00 pm

Please join the New Jersey Rare Action Network for a free Rare Disease Day advocacy event on March 11, 2019 from 8:30am-3:00pm. Please join the New Jersey Rare Action Network for a free Rare Disease Day advocacy event. Patients, families, caregivers, medical professionals, industry representatives, [...]

Ohio

Ohio Rare Disease Day 2019

Ohio State House, Governor Thomas Worthington Center
1 Capitol Square
Columbus, Ohio

February 28, 2019 10:00 am - 2:00 pm

Please join Ohio Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 10:00am-2:00pm at the Ohio State House, Governor Thomas Worthington Center, 1 Capitol Square, Columbus, OH 43215. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

Oregon

Oregon Rare Disease Day 2019

World Trade Center Portland
26 SW Salmon St
Portland, Oregon

March 07, 2019 9:00 am - 10:30 am

Please join Oregon Rare Action Network for Rare Disease Day Advocacy Event on March 7, 2019 from 9:00am-10:30am at the World Trade Center Portland, 26 SW Salmon St, Portland, OR 97204. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important [...]

Pennsylvania

Pennsylvania Rare Disease Day 2019

Pennsylvania State Capitol
501 N 3rd St
Harrisburg, Pennsylvania

May 07, 2019 10:00 am - 2:00 pm

*NOTE: This event is in Spring 2019* Please join Pennsylvania Rare Action Network for Rare Disease Day Advocacy Event Tuesday, May 7, 2019 10:00am at the Pennsylvania State Capitol, 501 N 3rd St, Harrisburg, PA 17120. Patients, families, caregivers, medical professionals and [...]

Wisconsin

Wisconsin Rare Disease Day 2019

Zablocki Pavilion
3717 W. Howard Avenue
Greenfield, Wisconsin

March 02, 2019 11:00 am - 2:00 pm

Please join Wisconsin Rare Action Network for Rare Disease Day Advocacy Event on Saturday, March 2, 2019 from 11:00am-2:00pm at the Zablocki Pavilion, 3717 W. Howard Avenue, Greenfield, WI 53221. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this [...]

California

California Rare Action Network Patient Advocacy & Orphan Drug Workshop

Hyatt Regency Sacramento
1209 L St
Sacramento, California

March 09, 2019 8:30 am - 3:00 pm

PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP March 9, 2019 from 8:30am to 3:00pm, Hyatt Regency Sacramento, Sacramento, California. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity [...]

North Carolina

Missouri

Rare KC Summit 2019: Innovating a Rare Center of Excellence

Ewing Marion Kauffman Foundation
4801 Rockhill Road
Kansas City, Missouri

March 04, 2019 8:00 am - 8:30 am

Open to the public, the RareKC Summit is a gathering of individuals, families and members of our life science and business community coming together to help accelerate the diagnosis, care and treatment of rare conditions. Online registration is required by [...]

Florida

Florida Rare Disease Day 2019

Heart of Florida United Way, Dr Phillips Conference Room
1940 Traylor Blvd
Orlando, Florida

February 28, 2019 10:00 am - 1:30 pm

Please join Florida Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 10:00am-1:30pm at the Heart of Florida United Way, Dr Phillips Conference Room, 1940 Traylor Blvd, Orlando, FL 32804. Patients, families, caregivers, medical professionals and industry representatives are [...]

California

California Rare Disease Day 2019

California State Capitol, Capitol Steps
1315 10th St,
Sacramento, California

February 28, 2019 9:30 am - 1:00 pm

Please join California Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 9:30am-1:00pm at the California State Capitol, Capitol Steps, 1315 10th St, Sacramento, CA 95814. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this [...]

Louisiana

Louisiana Rare Disease Day 2019

Louisiana State Capitol, Rotunda
900 North 3rd Street
Baton Rouge, Louisiana

April 08, 2019 10:00 am - 2:00 pm

Please join Louisiana Rare Action Network for Rare Disease Day Advocacy Event on APRIL 8, 2019 from 10:00am-2:00pm at the Louisiana State Capitol, Rotunda, 900 North 3rd Street, Baton Rouge, LA 70821. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

New Hampshire

Hoofbeats 5k

NHTI, Concord's Community College
31 College Dr
Concord, New Hampshire

June 01, 2019 9:00 am - 11:00 am

Join us for New Hampshire Rare Disorders Association's 3rd Annual Hoofbeats 5K to rare awareness of rare disorders! Satruday, June 1, 2019 from 9:00am-11:00am NHTI, Concord's Community College, 31 College Dr., Concord, NH 03301 This is a fun family event [...]

Arizona

Arizona Rare Disease Day 2019

Arizona State Capitol (Rare advocates to meet on the brick pavers in front of the golden dome at the Arizona State Capitol Museum near monument marker E, Congressional Medal of Honor Recipients)
1700 W Washington
Phoenix, Arizona

February 28, 2019 11:30 am - 2:00 pm

Please join Arizona Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 11:30am-2:00pm at the Arizona State, 1700 W Washington, Phoenix, AZ (Rare advocates to meet on the brick pavers in front of the golden dome [...]

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