Donate Now

Join RAN

All Events

Here you can find all upcoming events, physical and virtual.

Upcoming Events

Oregon Patient Advocacy & Orphan Drug Workshop

April 05, 2019

8:30 am - 3:00 pm

World Trade Conference Center
Portland, Oregon

Louisiana Rare Disease Day 2019

April 08, 2019

10:00 am - 2:00 pm

Louisiana State Capitol, Rotunda
Baton Rouge, Louisiana

Tennessee Rare Action Network Movie Night!

April 09, 2019

7:00 pm - 9:30 pm

The Belcourt Theatre
Nashville, Tennessee

Ohio Patient Advocacy & Orphan Drug Workshop

April 13, 2019

8:30 am - 3:00 pm

The Westin
Cincinnati , Ohio

Wisconsin Rare Disease Day Advocacy Event 2019

April 23, 2019

11:00 am - 4:30 pm

Wisconsin State Capitol, Assembly Parlor West
Madison, Wisconsin

CONNECTICUT PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP

May 03, 2019

8:30 am - 3:00 pm

The Goodwin Hotel
Hartford, Connecticut

Pennsylvania Rare Disease Day 2019

May 07, 2019

10:00 am - 2:00 pm

Pennsylvania State Capitol
Harrisburg, Pennsylvania

Hoofbeats 5k

June 01, 2019

9:00 am - 11:00 am

NHTI, Concord’s Community College
Concord, New Hampshire

Program Sponsors

Genentech Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo