RareAction Network
Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events
Adrenal Insufficiency United and Danny's Dose are working together to present a Family Fun and Emergency Preparedness Event that will take place on Saturday July 27th from 10am-1:30pm EST at Zoo Knoxville. Join us to learn about the importance of emergency treatment plans. Lunch and admission to the zoo after the event are included! Please […]
NORD Community Conversation Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child June 27, 2024 7:00 p.m. EST - 8:15 p.m. EST Virtual - Zoom Join us for an engaging discussion where community members can explore a comprehensive and supportive discussion. Hear from single rare parents about tools, resources, and information they […]
Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with rare diseases. Please RSVP by May 5th; registration is required, click here to register. Location: Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566
