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our mission is to
connect and empower

a unified network of
people and organizations

with tools, training,
and resources

to become effective
advocates
for rare diseases

The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.

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COVID-19 Virtual Discussion Groups

Please check your state’s profile page for scheduled COVID-19 virtual discussion groups. 

Check back regularly for new dates added daily.

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Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.

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