The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- #ICYMI: A recording of NORD's January 13 webinar "Creating a #RareDiseaseAdvisoryCouncil in Your State" is now avai… https://t.co/MAjalzVOqx
- RDAC tip from former #RareAction Network volunteer ambassador Charlene: "Identify nat'l #raredisease orgs that have… https://t.co/iIz3gTTbXA
- Thank you to LA @RepPaulHollis for introducing HB 460, a bill to create a Rare Disease Advisory Council in LA. We… https://t.co/oORuPLduTB
- Do you have health coverage for 2021 yet? If not, now is the time to #GetCovered! The Administration has opened a S… https://t.co/ddBM6GUWJn
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.