The RareAction Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- Happy 13th Birthday to the Affordable Care Act, which was signed into law by President Obama on 3/23/2010! The #ACA… https://t.co/Pd1rx3ex9i
- MI's Rare Disease Advisory Council (RDAC) bill,#HB4167, passed through the MI House of Reps! Thank you to… https://t.co/G6brNSP1Xv
- Attention Michigan #RareAction advocates! HB 4167 to create a Rare Disease Advisory Council will be voted on in the… https://t.co/kMVPd6ybwF
- #HB4167, legislation that would create an RDAC in MI, unanimously passed out of the House Health Policy Comm! Thank… https://t.co/hzsit6vUAk
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.