The RareAction Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- RT @RareDiseases: NORD's annual #StateReportCard has now been published, rating all 50 states and DC on critical issues affecting the over…
- RT @RareDiseases: That’s a wrap on The 40th Anniversary of the Orphan Drug Act Congressional Reception! Thank you @RepGusBilirakis @DorisMa…
- RT @RareDiseases: “The ODA was incredible 40 years ago and it’s been a critical driver of innovation for the #RareDisease community. We wan…
- RT @RareDiseases: “While we celebrate this milestone we must remember there is still much work to be done.” - The Honorable Gus Bilirakis…
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.