The RareAction Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
our mission is to
connect and empower
a unified network of
people and organizations
with tools, training,
and resources
to become effective
advocates for rare diseases
Rare Disease Day Events
To see if a NORD Rare Action Network Rare Disease Day event is happening near you
CLICK HERE
Don’t see an event near you? Hosting an event? Please visit www.rarediseaseday.us to learn
what other events are happening around the country or to submit your events
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.
