The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- Is there a Rare Disease Advisory Council (RDAC) in your state? Learn more about getting RDAC legislation introduced… https://t.co/cn5fQVGzke
- Exciting news for FL #raredisease advocates! FL's Rare Disease Advisory Council bill, SB272, passed unanimously out… https://t.co/POmVHEM1YW
- Are you interested in getting RDAC legislation introduced in your state? Learn more about the legislative process i… https://t.co/hiSemFrZvr
- RT @RareDiseases: New #webinar: "Advocating for a Rare Disease Advisory Council (RDAC) in Your State” on March 4 at 2:00pm ET. An #RDAC pro…
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.