The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- Interested in contributing to the #VA RDAC effort? Go to https://t.co/dZCWx4mfg8 to see how you can get involved.
- Thank you to VA Delegate @kmurphyva for introducing HB1995, to establish a #RDAC in VA! We're looking forward to wo… https://t.co/ppMq2Yqzbf
- 🚨 Attn TN #RareAction Advocates 🚨 Tell your lawmaker TODAY to oppose the implementation of a Medicaid block grant.… https://t.co/xhN8bPS1Ap
- RT @RareDiseases: Do you have questions about the recent #COVID19 #vaccine authorizations or what special considerations the #raredisease c…
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.