The RareAction Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment and care for every person impacted by a rare disease.
- Julie Beckett’s advocacy for her daughter led to the creation of “Katie Beckett waivers” & helped thousands of chil… https://t.co/JxulCKz75u
- Yesterday, legislation to establish a permanent RDAC in CT was signed into law! A huge thank you to the… https://t.co/LMorbTveoA
- We're thrilled to announce that our NY Volunteer State Ambassador, Mary Wootten, has been appointed to NY's Rare Di… https://t.co/LvY9IdO0jO
- NORD is proud to stand with dozens of other patient advocacy organizations in calling on Congress to keep healthcar… https://t.co/d3re45XODb
Become a rare advocate today to unlock resources to connect with other members of the rare disease community within your state, attend local events, meet and build relationships with key decision-makers and opinion leaders, and receive breaking news and updates on Calls to Action.