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In honor of Rare Disease Month, we are proud to announce our February exhibition, featuring the work of Peter Sonenshein, a Philadelphia artist living with familial dysautonomia. On Thursday, February 1st, from 6-8pm, join us in celebration of Peter’s “VISIONS FROM BEHIND THE CURTAIN,” a body of work made, in part, behind the hospital curtain. […]


Arkansas Rare Disease Day 2024

ACHE Research Institute Health and Wellness Center 1000 Fianna Way, Fort Smith, AR, United States

Friday, February 16, 2024 from 3:00 p.m. - 6:00 p.m.  ACHE Research Institute Health and Wellness Center, 1000 Fianna Way, Fort Smith, AR 72916 Stripe Out Arkansas for Rare Disease […]

Pennsylvania Virtual Rare Disease Day 2024

Pennsylvania Virtual Rare Disease Day Friday, February 23, 2024 from 12:00 p.m. – 1:00 p.m. This is a virtual event. Please join patients, families, caregivers, medical professionals, and industry representatives […]

2024 Cleveland, Ohio Rare Disease Day Event

MetroHealth Medical Center (Main Campus) 2500 MetroHealth Drive, Cleveland, OH, United States

Thursday, February 29, 2024 from 9:00 a.m. - 1:00 p.m. MetroHealth Medical Center (Main Campus), 2500 MetroHealth Drive, Cleveland, OH 44109 The event will be held in Rammelkamp Atrium and […]

Nationwide Children’s Rare Disease Day Columbus, OH

Nationwide Children's Hospital Education Center 575 S 18th St., Columbus, OH, United States

Friday, March 1, 2024, 4:30 PM - 8:00 PM Nationwide Children's Hospital Education Center, Columbus, OH Credits Non-Physician Attendance (5.00 hours), Community Program Attendance (5.00 hours), Non-Accredited (5.00 hours) Overview More than 300 million people in the world are affected by a rare disease. Rare is everywhere. As a Rare Disease Center of Excellence, Nationwide Children's is […]

Michael’s Tap Room Charity Night to Benefit NORD

Dine-in or take-out at Michael's Tap Room in Bethel, CT on Monday May 6th between 5pm-8pm and a portion of the proceeds will be donated to NORD! Reservations are encouraged. Location: Michaels Tap Toom, 37 Stony Hill Road, Bethel, CT 06801 Date/Time: Monday, May 6 from 5pm-8pm  

The Five Principles of Self-Advocacy

Adrenal Insufficiency United invites you to a live Zoom event with Lauren Kopsick, Founder and Executive Director of The Healthcare Navigation Project. She will be presenting “The Five Principles of Self-Advocacy” where you’ll leave with actionable knowledge that you can use when advocating for your own mental or physical health and care. The event will be hosted […]

Rare Moms Tea Brunch

Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with rare diseases. Please RSVP by May 5th; registration is required, click here to register. Location: Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566

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