RareAction Network
Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events
NORD Tennessee Rare Action Network Rare Disease Day One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. […]
NORD Arkansas Rare Action Network Rare Disease Day Saturday, February 25, 2023 Arkansas College of Osteopathic Medicine Main Building, 7000 Chad Colley Blvd., Fort Smith, AR. 72916 Event is from 11:00 am - 4:00 pm There is no cost to participants to attend this event. One of the greatest challenges individuals living with a rare […]
NORD Texas Rare Action and Baylor College of Medicine/Texas Children's Hospital Genetics are partnering to host a family-friendly Rare Disease Day State Resource Fair. One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and […]
NORD New York Rare Action Network Rare Disease Day Sunday, February 26, 2023 from 3:30 pm – 5:00 pm THIS IS A VIRTUAL EVENT One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and […]
The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106 You're invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare […]
Connecticut Rare Disease Day Thursday, March 23, 2023 from 8:30 am – 12:00 pm Legislative Office Building, 2nd Floor Atrium Capitol Avenue, Hartford, CT There is no cost to participants to attend this event. This Rare Disease Day is your chance to connect with other people and families living with rare diseases and supporters in […]
NORD Kentucky Rare Action Network Virtual Rare Disease Day Tuesday, February 28, 2023 THIS IS A VIRTUAL EVENT 11:00 am - 1:00 pm One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their […]
Rare Disease Day at Nationwide Children's Tuesday, February 28, 2023 at 4:30 PM - 8:00 PM Nationwide Children's, 700 Children's Dr, Columbus, OH 43205 Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and open to the public. For more information, visit NationwideChildrens.org/Rare-Disease-Day For questions, […]
NORD New Jersey Rare Action Network Rare Disease Day Tuesday, February 28, 2023 Make-A-Wish Castle, The Samuel & Josephine Plumeri Wishing Place 1384 Perrineville Road, Monroe Township, NJ 08831 5:00 pm - 8:00 pm There is no cost to participants to attend this event. One of the greatest challenges individuals living with a rare disease, […]
NORD Oklahoma Rare Action Network Rare Disease Day Saturday, March 4, 2023 Bethany Children's Health Center E.L. and Thelma Gaylord Foundation Education Center 6800 NW 39th Expressway, Bethany, OK. 73008 […]
NORD Wisconsin Rare Action Network Rare Disease Day Saturday, March 11, 2023 Evjue Commons space at Olbrich Botanical Gardens 3330 Atwood Ave, Madison, WI 53704 Event is from 1:00pm -3:00 […]
NORD Iowa Rare Action Network Rare Disease Day Saturday, March 11, 2023 This is a virtual event. Event is from 2:00pm -4:00 pm There is no cost to participants to […]
