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Maine Rare Disease Day Virtual Event

Maine RareAction Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Maine legislators and the general public on […]

Utah Rare Disease Day Virtual Event

Utah RareAction Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Utah legislators and the general public on […]

New Jersey Rare Disease Day Virtual Event

New Jersey RareAction Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New Jersey legislators and the general […]

2022 NORD Virtual Rare Disease Day Event

SHOW YOUR STRIPES WITH NORD! Monday, February 28, 2022 1:30 pm – 2:30 pm EST Grab your favorite zebra print shirt or toss on a striped scarf and meet us online for a community gathering marking the 12th annual Rare Disease Day! This one hour event will be packed with entertainment from a star-studded guest […]

Ohio Rare Disease Day Virtual Event

Ohio Rare Disease Day Virtual Event Thursday, February 24, 2022 10:00 am – 12:00 pm EST The Ohio Rare Action Network and the Connor B. Judge Foundation invite you to […]

Connecticut Rare Disease Day Virtual Event

Connecticut Rare Disease Day Virtual Event Friday, February 25, 2022 9:00 am – 10:30 am EST Please join patients, families, caregivers, and other rare disease advocates as we raise awareness […]

Florida Rare Disease Day Virtual Event

Florida Rare Disease Day Virtual Event Friday, February 25, 2022 10:30 am – 11:30 am EST Please join patients, families, caregivers, and other rare disease advocates as we raise awareness […]

UCLA RARE DISEASE DAY 2022

UCLA RARE DISEASE DAY 2022 Friday, February 25, 2022, from 1:00 pm– 3:00 pm PT This free, virtual community event will inform audiences on how industry, academia, and advocacy organizations can work together to develop novel therapies for rare disease patients and understand the emerging challenges to accelerating progress for ever-smaller rare disease markets. Hear […]

New York Rare Disease Day Virtual Event

New York Rare Disease Day Virtual Event Sunday, February 27, 2022 6:00 pm – 7:30 pm EST Please join patients, families, caregivers, and other rare disease advocates as we raise […]

Delaware Rare Disease Day Virtual Event

Delaware Rare Disease Day Virtual Event Saturday, March 19, 2022 12:00 pm – 1:30 pm EST Please join patients, families, caregivers, and other rare disease advocates as we raise awareness […]

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