Donate Now

Join RAN

Loading Events

Upcoming Events › NORD Events

Events Search and Views Navigation

Event Views Navigation

February 2020

Colorado Rare Disease Day 2020

February 27 @ 8:30 am - 2:00 pm
Colorado State Capitol Building, 2nd Floor West Foyer, 200 E Colfax Avenue
Denver, CO 80203 United States
+ Google Map

Colorado Rare Disease Day 2020 Presented by Colorado Rare Action Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax Ave, Denver, CO 80203. patients, families, caregivers, medical professionals and industry representatives at this important event to educate Colorado legislators on the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great…

Find out more »

New York Rare Disease Day 2020 at the Capitol

February 27 @ 9:00 am - 2:00 pm
Legislative Office Building, Room 104A, State Street and Washington Avenue
Albany, NY 12224 United States
+ Google Map

Thursday, February 27, 2020 from 9:00am - 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day in the state of New York will be read on the floor. Please note, the time for the resolution hearing will be announced the week…

Find out more »

Ohio Rare Disease Day 2020

February 27 @ 10:00 am - 5:00 pm
Harrington Discovery Institute University Hospitals, 11407 Euclid Avenue, Floor 2
Cleveland, OH United States
+ Google Map

Ohio Rare Disease Day 2020 Thursday, February 27, 2020 at 10:00a.m. Registration opens at 9:00a.m. Harrington Discovery Institute University Hospitals 11407 Euclid Avenue, Floor 2, Cleveland, Ohio, 44106 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in…

Find out more »

Kentucky Rare Disease Day 2020

February 27 @ 10:30 am - 2:00 pm
Kentucky State Capitol, 700 Capitol Avenue SW
Frankfort, KY 40601 United States
+ Google Map

February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky Rare Action Network patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Kentucky.  

Find out more »

Connecticut Rare Disease Day 2020

February 28 @ 8:00 am - 10:30 am
Connecticut State Legislative Office Building, 300 Capitol Avenue
Hartford, CT 06106 United States

NORD Connecticut Rare Action Network Rare Disease Day 2020 Friday, February 28, 2020 at 8:00a.m. -10:30a.m. Connecticut State Legislative Office Building, 300 Capitol Avenue, Hartford, CT Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut. CLICK HERE TO REGISTER

Find out more »

Georgia Rare Disease Day 2020

February 28 @ 1:30 pm - 4:00 pm
Georgia State Capitol, 206 Washington Street SW
Atlanta, GA 30334 United States
+ Google Map

Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Georgia. REGISTER HERE

Find out more »

Tucson, Arizona Rare Disease Day 2020

February 29 @ 10:00 am - 2:00 pm
Tucson Children’s Museum, 200 S 6th Ave
Tucson, AZ 85701 United States
+ Google Map

Tucson, Arizona Rare Disease Day Saturday, February 29, 2020 Brought to you by MECP2 Duplication Foundation and Arizona Rare Action Network Tuscon Children’s Museum, 200 S 6th Ave, Tucson, AZ 85701 Join patients, families, caregivers and all rare disease stake holders at this fun family friendly event to learn about the challenges rare disease patients face, resources available to address these challenges, connect with other rare families and learn how you can make a difference in the lives of rare…

Find out more »

Texas Rare Disease Day 2020

February 29 @ 10:30 am - 2:00 pm
Sugar Land Town Square, Highway 6 and U.S. 59
Sugar Land, TX 77479 United States
+ Google Map

JOIN US TO RAISE RARE DISEASE AWARENESS Saturday, February 29, 2020 10:30 a.m. – 2 p.m. Sugar Land Town Square Located at Highway 6 and U.S. 59, Sugar Land, TX 77479 Family Friendly Event with Live Music, Games & More According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 Americans. One in 10 Americans live with a rare disease—affecting 30 million people—and nearly half of these patients are children. There are…

Find out more »

New Hampshire Rare Disease Day Luncheon at the Common Man Restaurant 

February 29 @ 11:00 am - 2:00 pm
Common Man Restaurant, 25 Water Street
Concord, NH 03301 United States
+ Google Map

Rare Disease Day Lunch at the Common Man Restaurant  Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to participants to attend this event. Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare…

Find out more »

Oklahoma Rare Disease Day 2020

February 29 @ 11:00 am - 2:00 pm
Oklahoma Science Museum, 2020 Remington Pl
Oklahoma City, OK 73111 United States
+ Google Map

Saturday, February 29, 2020 from 11:00am - 2:30pm  Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day of the Year (February 29th) to celebrate people with rare disorders and advocate on their behalf at Rare Disease Day 2020. Rare Disease Day is a worldwide awareness effort designed to being together families with rare diagnoses to build their networks, engage with researchers and learn more about the resources…

Find out more »
+ Export Events

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo