RareAction Network
Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events
NORD Community Conversation: Building Awareness & Support Through Rare Disease Day Thursday, February 8, 2024 from 7:00pm-8:05pm ET In honor of Rare Disease Day on February 29, 2024, we invite you to join us for an engaging virtual discussion where community members will explore strategies to raise awareness for rare diseases and effectively advocate in […]
Friday, February 16, 2024 from 3:00 p.m. - 6:00 p.m. ACHE Research Institute Health and Wellness Center, 1000 Fianna Way, Fort Smith, AR 72916 Stripe Out Arkansas for Rare Disease Day 2024! Please join members of the rare disease community at this important event to discuss the challenges people living with rare diseases and disorders […]
Pennsylvania Virtual Rare Disease Day Friday, February 23, 2024 from 12:00 p.m. – 1:00 p.m. This is a virtual event. Please join patients, families, caregivers, medical professionals, and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare […]
Thursday, February 29, 2024 from 9:00 a.m. - 1:00 p.m. MetroHealth Medical Center (Main Campus), 2500 MetroHealth Drive, Cleveland, OH 44109 The event will be held in Rammelkamp Atrium and The Alfred F. Connors, Jr., MD Learning Center- R170. Pre-event registration is now closed. We welcome you to register onsite on event day. Registration will […]
NORD Community Conversation Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child June 27, 2024 7:00 p.m. EST - 8:15 p.m. EST Virtual - Zoom Join us for an engaging discussion where community members can explore a comprehensive and supportive discussion. Hear from single rare parents about tools, resources, and information they […]
