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Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events

Latest Past Events

NORD Community Conversation: Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child (Virtual Event)

NORD Community Conversation   Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child June 27, 2024 7:00 p.m. EST - 8:15 p.m. EST Virtual - Zoom  Join us for an engaging discussion where community members can explore a comprehensive and supportive discussion. Hear from single rare parents about tools, resources, and information they […]

Rare Moms Tea Brunch

Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with […]

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