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NORD Texas Rare Action Network

|RareTX.org

February 2021

Texas Rare Disease Day Virtual Event

February 28 @ 2:00 pm - 3:30 pm

Texas Rare Action Network, Baylor College of Medicine and Texas Children's Hospital invite you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Texas legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Texas by providing stakeholders an opportunity…

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