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NORD Oklahoma Rare Action Network

|RareOK.org

February 2021

Oklahoma Rare Disease Day Virtual Event

February 25 @ 2:00 pm - 3:30 pm

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Oklahoma legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Oklahoma by providing stakeholders an opportunity to make formal recommendations to state leaders about…

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