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February 2020

Race for Ryland 5K

February 29 @ 8:00 am - 11:00 am
TX United States + Google Map

Race for Ryland 5K Lace up your shoes and come run (walk) with us in to help raise awareness for rare diseases/disorders and honor our Rare Warrior Ryland Grace, born with Pyruvate Dehydrogenase Complex, on the rarest day of the year. February 29, 2020 at Walker Ranch Heritage Park, 12603 West Avenue, San Antonio Texas 78216 This is a Family and dog friendly event. Registration is open for runner 5 and up!  All proceeds from race are being donated to the…

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Tucson, Arizona Rare Disease Day 2020

February 29 @ 10:00 am - 2:00 pm
Tucson Children’s Museum, 200 S 6th Ave
Tucson, AZ 85701 United States
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Tucson, Arizona Rare Disease Day Saturday, February 29, 2020 Brought to you by MECP2 Duplication Foundation and Arizona Rare Action Network Tuscon Children’s Museum, 200 S 6th Ave, Tucson, AZ 85701 Join patients, families, caregivers and all rare disease stake holders at this fun family friendly event to learn about the challenges rare disease patients face, resources available to address these challenges, connect with other rare families and learn how you can make a difference in the lives of rare…

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Texas Rare Disease Day 2020

February 29 @ 10:30 am - 2:00 pm
Sugar Land Town Square, Highway 6 and U.S. 59
Sugar Land, TX 77479 United States
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JOIN US TO RAISE RARE DISEASE AWARENESS Saturday, February 29, 2020 10:30 a.m. – 2 p.m. Sugar Land Town Square Located at Highway 6 and U.S. 59, Sugar Land, TX 77479 Family Friendly Event with Live Music, Games & More According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 Americans. One in 10 Americans live with a rare disease—affecting 30 million people—and nearly half of these patients are children. There are…

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New Hampshire Rare Disease Day Luncheon at the Common Man Restaurant 

February 29 @ 11:00 am - 2:00 pm
Common Man Restaurant, 25 Water Street
Concord, NH 03301 United States
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Rare Disease Day Lunch at the Common Man Restaurant  Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to participants to attend this event. Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare…

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Oklahoma Rare Disease Day 2020

February 29 @ 11:00 am - 2:00 pm
Oklahoma Science Museum, 2020 Remington Pl
Oklahoma City, OK 73111 United States
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Saturday, February 29, 2020 from 11:00am - 2:30pm  Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day of the Year (February 29th) to celebrate people with rare disorders and advocate on their behalf at Rare Disease Day 2020. Rare Disease Day is a worldwide awareness effort designed to being together families with rare diagnoses to build their networks, engage with researchers and learn more about the resources…

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Wisconsin Rare Disease Day 2020

February 29 @ 12:00 pm - 3:00 pm
Gardner Room at the Wehr Nature Center, 9701 W. College Avenue WI 53132 United States + Google Map

Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to participants to attend this event. Wisconsin Rare Action Network invites you to join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face, resources available to address these challenges, and learn how you can make a difference in the…

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Arkansas Rare Disease Day 2020

February 29 @ 1:00 pm - 4:00 pm
Arkansas College of Osteopathic Medicine, 7000 Chad Colley Blvd
Fort Smith, AR 72916 United States
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Arkansas Rare Action Network Rare Disease Day Saturday, February 29, 2020 Arkansas College of Osteopathic Medicine,  7000 Chad Colley Blvd, Fort Smith, AR 72916 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Arkansas. CLICK HERE TO REGISTER  

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Rare Disease Day NYC

February 29 @ 3:00 pm - 7:00 pm

Rocket Pharmaceutical’s Rare Disease Day event aims to provide all who attend an opportunity to learn more about rare disease and the need for new treatment options. The event will highlight patient artists who raise awareness of their disease through their artwork. At the event, patient panelists will share their personal experiences with rare disease, and attendees will be given an opportunity to mingle with patients, caregivers, patient advocates, researchers and physicians. Rocket will also have educational materials available to…

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Rock The Causebah Concert Fundraiser in Austin, Texas

February 29 @ 5:30 pm - 11:00 pm
The North Door, 501 Brushy Street
Austin, TX 78702 United States
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$10

ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing prizes from 5:30pm - 11pm. All ages are welcome and $10 at the door!  Proceeds to benefit the National Organization for Rare Disorders and the Galactosemia Foundation For more information visit: https://www.facebook.com/rockthecausebah  or contact Logan Greenday at [email protected]

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Be Fierce Glow Gala

February 29 @ 7:00 pm - 10:00 pm
The DoSeum (San Antonio Children’s Museum), 2800 Broadway Street
San Antonio, 78209 United States
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See website for details

Let's Glow! Join Be Fierce Foundation for a one-of-a-kind blacklight family-friendly party to help bring awareness to kids and families battling rare diseases. Feb. 29, 2020 is Rare Disease Day, so we're going big for FIERCE kids! Wear white...neon...or anything that glows as we rock The DoSeum. Snacks, sweets and activities will be planned throughout the evening. The party starts at 7 p.m. but doors open at 6:30. Additional details at www.befierce.org The DoSeum (San Antonio Children's Museum), 2800 Broadway…

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