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February 2021

Indiana Rare Disease Day Virtual Event

February 24 @ 7:00 pm - 8:30 pm

Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Indiana legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Indiana by providing stakeholders an opportunity to make formal recommendations to state leaders about…

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Oklahoma Rare Disease Day Virtual Event

February 25 @ 2:00 pm - 3:30 pm

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Oklahoma legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Oklahoma by providing stakeholders an opportunity to make formal recommendations to state leaders about…

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New York Rare Disease Day Virtual Event

February 25 @ 6:30 pm - 8:00 pm

New York Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New York legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the New York Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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South Carolina Rare Disease Day Virtual Event

February 26 @ 9:00 am - 10:30 am

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate South Carolina legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where South Carolina is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC…

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Florida Rare Disease Day Virtual Event

February 26 @ 10:00 am - 11:00 am

Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Florida legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Florida is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

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Tennessee Rare Disease Day Virtual Event

February 26 @ 12:00 pm - 2:00 pm

Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Tennessee legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Tennessee Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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Illinois Rare Disease Day Virtual Event

February 26 @ 12:00 pm - 2:00 pm

Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Illinois legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Illinois Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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Georgia Rare Disease Day Virtual Event

February 26 @ 1:00 pm - 2:30 pm

Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Georgia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Georgia is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

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Connecticut Rare Disease Day Virtual Event

February 27 @ 9:00 am - 10:30 am

Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Connecticut legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Connecticut Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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Arkansas Rare Disease Day Virtual Event

February 27 @ 10:00 am - 11:30 am

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Arkansas legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Arkansas is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

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