Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Illinois legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Illinois Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Georgia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Georgia is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Arkansas legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Arkansas is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Louisiana legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Louisiana by providing stakeholders an opportunity to make formal recommendations to state leaders about…

Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Delaware legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Delaware by providing stakeholders an opportunity to make formal recommendations to state leaders about…

Texas Rare Action Network, Baylor College of Medicine and Texas Children's Hospital invite you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Texas legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Texas by providing stakeholders an opportunity…

Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Maine legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Maine by providing stakeholders an opportunity to make formal recommendations to state leaders about…

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Utah legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Utah Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.