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February 2020

Nevada Rare Disease Day 2020

February 21 @ 10:30 am - 1:00 pm
Grant Sawyer State Office Building, 555 East Washington Avenue
Las Vegas, NV 89101 United States
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Friday, February 21, 2020 Grant Sawyer State Office Building, Atrium, 555 E Washington Ave #5100, Las Vegas, NV. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Nevada. CLICK HERE TO REGISTER

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New Jersey Rare Disease Day 2020

February 24 @ 8:30 am - 12:30 pm

New Jersey Rare Disease Day  Monday, February 24, 2020 from 8:30am-12:30pm New Jersey State Museum, Riverside Court (1st Floor) 205 West State Street, Trenton, New Jersey. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New Jersey. CLICK HERE TO REGISTER

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Colorado Rare Disease Day 2020

February 27 @ 8:30 am - 2:00 pm
Colorado State Capitol Building, 2nd Floor West Foyer, 200 E Colfax Avenue
Denver, CO 80203 United States
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Colorado Rare Disease Day 2020 Presented by Colorado Rare Action Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax Ave, Denver, CO 80203. patients, families, caregivers, medical professionals and industry representatives at this important event to educate Colorado legislators on the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great…

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New York Rare Disease Day 2020 at the Capitol

February 27 @ 9:00 am - 2:00 pm
Legislative Office Building, Room 104A, State Street and Washington Avenue
Albany, NY 12224 United States
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Thursday, February 27, 2020 from 9:00am - 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day in the state of New York will be read on the floor. Please note, the time for the resolution hearing will be announced the week…

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Ohio Rare Disease Day 2020

February 27 @ 10:00 am - 5:00 pm
Harrington Discovery Institute University Hospitals, 11407 Euclid Avenue, Floor 2
Cleveland, OH United States
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Ohio Rare Disease Day 2020 Thursday, February 27, 2020 at 10:00a.m. Registration opens at 9:00a.m. Harrington Discovery Institute University Hospitals 11407 Euclid Avenue, Floor 2, Cleveland, Ohio, 44106 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in…

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Kentucky Rare Disease Day 2020

February 27 @ 10:30 am - 2:00 pm
Kentucky State Capitol, 700 Capitol Avenue SW
Frankfort, KY 40601 United States
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February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky Rare Action Network patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Kentucky.  

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Connecticut Rare Disease Day 2020

February 28 @ 8:00 am - 10:30 am
Connecticut State Legislative Office Building, 300 Capitol Avenue
Hartford, CT 06106 United States

NORD Connecticut Rare Action Network Rare Disease Day 2020 Friday, February 28, 2020 at 8:00a.m. -10:30a.m. Connecticut State Legislative Office Building, 300 Capitol Avenue, Hartford, CT Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut. CLICK HERE TO REGISTER

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Minnesota Rare Disease Day at the University of Minnesota 2020

February 28 @ 9:00 am - 2:30 pm
McNamara Alumni Center, 200 SE Oak St
Minneapolis, MN 55455 United States
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The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m. McNamara Alumni Center, 200 SE Oak St, Minneapolis, MN 55455 Keynote: Sarah Wicks, JD, MPH Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to bring life-changing therapies to market, particularly for persons with rare disease. She is a graduate of the University of Maryland School of Law and Johns…

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MassBio Massachusetts Rare Disease Day 2020

February 28 @ 9:30 am - 12:30 pm
Omni Parker House, 60 School Street
Boston, MA 02108 United States
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Friday, February 28, 2020 from 9:30am - 12:30pm Omni Parker House, 60 School Street, Boston, MA 02108 The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. The event recognizes Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease. This year’s agenda will feature two…

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Georgia Rare Disease Day 2020

February 28 @ 1:30 pm - 4:00 pm
Georgia State Capitol, 206 Washington Street SW
Atlanta, GA 30334 United States
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Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Georgia. REGISTER HERE

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