West Virginia

Kenny Brooks
West Virginia State Ambassador
[email protected]

West Virginia Rare Disease Day Virtual Event

Tuesday, February 23, 2021
10:00am – 11:30am EST

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate West Virginia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the West Virginia Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

West Virginia COVID-19 Resources & Information

West Virginia State Resources
West Virginia Department of Health and Human Resources has created this helpful resource website in response to COVID-19.
https://dhhr.wv.gov/COVID-19/Pages/default.aspx

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for West Virginia’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in West Virginia.

In order to make meaningful change in the lives of rare disease patients and their families in the state of West Virginia, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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