West Virginia

Kenny Brooks
West Virginia State Ambassador
[email protected]

Check out the West Virginia Rare Disease Day Virtual Event Recording

West Virginia RareAction Network hosted a Rare Disease Day Virtual Event on February 23, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated West Virginia legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for West Virginia’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in West Virginia.

West Virginia COVID-19 Resources & Information

West Virginia State Resources
West Virginia Department of Health and Human Resources has created this helpful resource website in response to COVID-19.
https://dhhr.wv.gov/COVID-19/Pages/default.aspx

In order to make meaningful change in the lives of rare disease patients and their families in the state of West Virginia, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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