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Virginia Rare Disease Day Virtual Event

Wednesday, February 24, 2021
5:30pm – 7:00pm EST

Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Virginia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Virginia is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.


Jana Monaco
Virginia State Ambassador
[email protected]

Allison Herrity
Virginia Community Engagement Liaison
[email protected]

COVID-19 Resources & Information

State Resource Page

Virginia Department of Health has created this helpful
resource website in response to COVID-19.

What's Happening Now?


Please join the Virginia Rare Action Network for virtual rare discussion groups. They are held on the second Wednesday of every other month at 12:00pm EST. Join rare advocates to discuss challenges rare patients are facing in Virginia and connect with others.

Click here to register for the meeting(s).

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Virginia’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Virginia.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Virginia, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Scott A. White, Commissioner

Virginia State Corporation
Commission Bureau of Insurance
PO Box 1157
Richmond, Virginia 23218


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click here

Online Complaint Submission

TDD 804-371-9206

State Health Insurance Consumer Assistance Program
Insurance Outreach Coordinator

Consumer Assistance Program Email: L&[email protected]
Toll Free: 1-877-310-6560

Kaiser State Exchange Profile
State Reforum State Profile


Department Of Medical Assistance Services
600 East Broad Street
Richmond, Virginia 23219

Email for Assistance: [email protected]

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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