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Jana Monaco
Virginia State Ambassador
[email protected]

What's Happening Now?

Please join NORD’s Virginia RareAction Network (RAN)  for our upcoming Virtual Rare Discussion Group to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all–you do not have to be a RAN member.

Wednesday, July 7, 2021 at 4:00pm EST
Click Here to Register for the Virtual Discussion Group

Check out the Virginia Rare Disease Day Virtual Event Recording

Virginia RareAction Network hosted a Rare Disease Day Virtual Event on February 24, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Virginia legislators and the general public on the challenges faced by rare disease patients and their families.


RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Virginia’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Virginia.

COVID-19 Resources & Information

State Resource Page

Virginia Department of Health has created this helpful
resource website in response to COVID-19.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Virginia, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Scott A. White, Commissioner

Virginia State Corporation
Commission Bureau of Insurance
PO Box 1157
Richmond, Virginia 23218


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click here

Online Complaint Submission

TDD 804-371-9206

State Health Insurance Consumer Assistance Program
Insurance Outreach Coordinator

Consumer Assistance Program Email: L&[email protected]
Toll Free: 1-877-310-6560

Kaiser State Exchange Profile
State Reforum State Profile


Department Of Medical Assistance Services
600 East Broad Street
Richmond, Virginia 23219

Email for Assistance: [email protected]

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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