Donate Now

Join RAN


Matt Pearl
Utah Volunteer State Ambassador 
[email protected]

Utah Rare Disease Day Virtual Event

Tuesday, March 2 2021
12:00pm – 1:30pm MST

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Utah legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Utah Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.


Utah COVID-19 Resources & Information

Utah State Resources 
Utah Government has created this helpful resources website in response to COVID-19.

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Utah’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Utah.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Utah, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Todd E. Kiser, Commissioner

Utah Insurance Department
3110 State Office Building
Salt Lake City, Utah 84114


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]

Salt Lake City area: 801-538-3890
In-state toll-free: 1-800-439-3805

State Health Insurance Consumer Assistance Program
Michelle White, Health Consumer Service Analyst


Marketplace Structure: Federal

For Small Businesses:

60 E. South Temple, Third Floor
Salt Lake City, Utah 84111


Marketplace Contact: [email protected]
Marketplace Website

For Individuals:

Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


Utah Department of Health Division of Medicaid and Health Financing
P.O. Box 143106
Salt Lake City, UT 84114-3106

801-538-6155 or 1-800-662-9651

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


Rare Disease Day Logo

Running4Rare Logo