Donate Now

Join RAN

Rhode Island

Rhode Island State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

Rhode Island COVID-19 Resources & Information

State Resources
Rhode Island Department of Health has created this helpful resource website in response to COVID-19.

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Rhode Island’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Rhode Island.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Rhode Island, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Elizabeth Kelleher Dwyer, Deputy Director and Superintendent of Insurance

State of Rhode Island
Department of Business Regulation Division of Insurance
1511 Pontiac Avenue, Building 69-2
Cranston, Rhode Island 02920


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission: Mail this form to:

1511 Pontiac Ave
Building 69 1st Floor

Email for Assistance: [email protected]

State Health Insurance Consumer Assistance Program

Rhode Island Consumer Assistance Program, Rhode Island Parent Information Network
1210 Pontiac Avenue
Cranston, RI 02920

State Health Insurance Consumer Assistance Program Email


NORD Links


Rare Disease Day Logo

Running4Rare Logo