Pennsylvania State Ambassador
What's Happening Now?
Pennsylvania Rare Disease Day, Wednesday, June 3, 2020
Please join Pennsylvania Rare Action Network for Rare Disease Day Advocacy Event on June 3, 2020 at the Pennsylvania State Capitol, 501 N 3rd St, Harrisburg, PA 17120. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Pennsylvania. REGISTER HERE
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
Jessica K. Altman, Commissioner
Pennsylvania Insurance Department
1326 Strawberry Square
Harrisburg, Pennsylvania 17120
1-877-881-6388 or 717-783-3898
Pennsylvania Consumer Assistance Program
1209 Strawberry Square
Harrisburg, PA 17111
215-560-2630 or 1-877-881-6388