Pennsylvania

Christine McGarvey
Volunteer Community Ambassador
[email protected]

What's Happening Now?

NORD Pennsylvania Rare Action Network Virtual Rare Disease Day
Friday, February 24, 2023
This is a virtual event
12:00 pm – 1:00 pm

One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a Virtual State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.

Register Here

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

Pennsylvania COVID-19 Resources & Information

Pennsylvania State Resources
‘The state of Pennsylvania has created this helpful resource website in response to COVID-19.
https://www.health.pa.gov/topics/disease/coronavirus/Pages/Coronavirus.aspx

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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