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Christine McGarvey
Volunteer Community Ambassador
[email protected]

What's Happening Now?

Pennsylvania Virtual Rare Disease Day
Friday, February 23, 2024 from 12:00 p.m. – 1:00 p.m.
This is a virtual event.

Please join patients, families, caregivers, medical professionals, and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Pennsylvania. There is no cost to attend this event. 


The event is hosted by volunteers working with the National Organization for Rare Disorders (NORD) and its Rare Action Network, in honor of Rare Disease Day.

Pennsylvania COVID-19 Resources & Information

Pennsylvania State Resources
‘The state of Pennsylvania has created this helpful resource website in response to COVID-19.

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Jessica K. Altman, Commissioner

Pennsylvania Insurance Department
1326 Strawberry Square
Harrisburg, Pennsylvania 17120



In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-877-881-6388 or 717-783-3898

State Health Insurance Consumer Assistance Program

Pennsylvania Consumer Assistance Program
1209 Strawberry Square
Harrisburg, PA 17111

215-560-2630 or 1-877-881-6388

Kaiser State Exchange Profile
State Reforum State Profile


Department of Public Welfare
P.O. Box 2675
Harrisburg PA 17105-2675


Medicaid Website
Contact for Assistance
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

The PA Rare Disease Advisory Council is a resource for patients, physicians, and families to help those living with a rare disease.

NORD Links


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