Pennsylvania

Christine McGarvey
Volunteer Community Ambassador
[email protected]

Please join NORD’s Pennsylvania Rare Action Network (RAN) Virtual Rare Discussion Group on Thursday, June 22, 2023 at 12:00 PM EST. It is your chance to connect with other people and families living with rare diseases and supporters in your state. During the event, community members – including patients, caregivers, friends, advocates, healthcare professionals, and elected officials – are invited to come together to make connections, learn about local resources and services to help in your journey with rare disease. This meeting is open to all and you do not have to be a RAN member to attend.

REGISTER HERE

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.