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Nicole Wilson
Pennsylvania Volunteer State Ambassador
[email protected]

What's Happening Now?

Please join NORD’s Pennsylvania Rare Action Network (RAN)  for our upcoming Virtual Rare Discussion Group to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all – you do not have to be a RAN member.

Wednesday, September 8, 2021 at 7:00pm EST
Click Here to Register for the September 8th Virtual Rare Discussion Group

Thursday, December 9, 2021 at 7:00pm EST
Click Here to Register for the December 9th Virtual Rare Discussion Group

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

Pennsylvania COVID-19 Resources & Information

Pennsylvania State Resources
‘The state of Pennsylvania has created this helpful resource website in response to COVID-19.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Jessica K. Altman, Commissioner

Pennsylvania Insurance Department
1326 Strawberry Square
Harrisburg, Pennsylvania 17120



In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-877-881-6388 or 717-783-3898

State Health Insurance Consumer Assistance Program

Pennsylvania Consumer Assistance Program
1209 Strawberry Square
Harrisburg, PA 17111

215-560-2630 or 1-877-881-6388

Kaiser State Exchange Profile
State Reforum State Profile


Department of Public Welfare
P.O. Box 2675
Harrisburg PA 17105-2675


Medicaid Website
Contact for Assistance
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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