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Christine McGarvey
Volunteer Community Ambassador
[email protected]


What's Happening Now?

Please join NORD’s Pennsylvania Rare Action Network (RAN) Virtual Rare Discussion Group on Thursday, June 22, 2023 at 12:00 PM EST. It is your chance to connect with other people and families living with rare diseases and supporters in your state. During the event, community members – including patients, caregivers, friends, advocates, healthcare professionals, and elected officials – are invited to come together to make connections, learn about local resources and services to help in your journey with rare disease. This meeting is open to all and you do not have to be a RAN member to attend.


Pennsylvania COVID-19 Resources & Information

Pennsylvania State Resources
‘The state of Pennsylvania has created this helpful resource website in response to COVID-19.

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Jessica K. Altman, Commissioner

Pennsylvania Insurance Department
1326 Strawberry Square
Harrisburg, Pennsylvania 17120



In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-877-881-6388 or 717-783-3898

State Health Insurance Consumer Assistance Program

Pennsylvania Consumer Assistance Program
1209 Strawberry Square
Harrisburg, PA 17111

215-560-2630 or 1-877-881-6388

Kaiser State Exchange Profile
State Reforum State Profile


Department of Public Welfare
P.O. Box 2675
Harrisburg PA 17105-2675


Medicaid Website
Contact for Assistance
Medicaid Appeal Process

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

The PA Rare Disease Advisory Council is a resource for patients, physicians, and families to help those living with a rare disease.

NORD Links


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