Oregon State Ambassador
What's Happening Now?
PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Friday, April 5, 2019 from 8:30am to 3:00pm in Portland, Oregon. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop.
This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from Oregon about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided. Register Today!
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Oregon’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Oregon.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Oregon, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Andrew R. Stolfi, Commissioner
Oregon Dept. of Financial Regulation
PO Box 14480
Salem, Oregon 97309-0405
1435 NE 81st Avenue
Portland, Oregon 97213-6759
Consumer Assistance Program Email: firstname.lastname@example.org
Marketplace Structure: State
16760 SW Upper Boones Ferry Road
Durham, OR 97224
Marketplace Contact: email@example.com
Division of Medical Assistance Programs Administrative Office
500 Summer Street NE
Salem, OR 97301-1079
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources