Oklahoma

Janet Wilson
Oklahoma State Ambassador
[email protected]

What's Happening Now?

NORD Oklahoma Rare Action Network Rare Disease Day
Saturday, March 4, 2023
Bethany Children’s Health Center
E.L. and Thelma Gaylord Foundation Education Center
6800 NW 39th Expressway, Bethany, OK. 73008
1:00 pm – 4:00pm

One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.

Register Here

RAN_Megephone_RGB Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Oklahoma’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Oklahoma.

COVID-19 Resources & Information

State Resource Page

The Oklahoma Department of Health has created this helpful resource website in response to COVID-19.

Please visit: https://coronavirus.health.ok.gov/

Oklahoma needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Oklahoma, please contact your State Ambassador.

Learn Key Issues

Do Something

Share Your Event