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Oklahoma

Tamra Misak
Oklahoma State Ambassador
[email protected]

Oklahoma Rare Disease Day Virtual Event

Thursday, February 25, 2021
2:00pm – 3:30pm CST

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Oklahoma legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Oklahoma by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.

REGISTER HERE 

What's Happening Now?

COVID-19 Resources & Information

State Resource Page

The Oklahoma Department of Health has created this helpful resource website in response to COVID-19.

Please visit: https://coronavirus.health.ok.gov/

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Please join the Oklahoma Rare Action Network for our monthly virtual rare discussion groups. They are held on the first Wednesday of every month at 11am CST. Join rare advocates to discuss challenges rare patients are facing in Oklahoma and connect with others. Click here to register for the meeting(s).

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Oklahoma’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Oklahoma.

Oklahoma needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Oklahoma, please contact your State Ambassador.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Glenn Mulready, Commissioner

Oklahoma Insurance Department
7645 E. 63rd St., Suite 102
Tulsa, OK 74133

918-295-3700

405-521-2828

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

State Health Insurance Consumer Assistance Program

Oklahoma Insurance Department
Five Corporate Plaza
3625 NW 56th, Ste 100
Oklahoma City, OK 73112

1-800-522-0071 (in state only)
or 405-521-2991

Ombudsman Email: [email protected]
Ombudsman Website

NORD Links

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