Ohio

PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Saturday, April 13, 2019 from 8:30am to 3:00pm, Cincinnati, Ohio. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop.

This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from Ohio about the Orphan Drug Act. This event is hosted at no cost to participants. Light breakfast and lunch will be provided. Register Today!

Charlene York
Ohio State Ambassador
charlene.york@rareaction.org

Maurisa Chase
Community Engagement Liaison
maurisa.chase@rareaction.org

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Ohio.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.