Ohio

COVID-19 Resources & Information

State Resource Page

Ohio Department of Health has created this helpful
resource website in response to COVID-19.
Please visit: https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home

Cincinnati Area COVID-19 Resource Guide CLICK HERE

Additional resources Cincinnati area CLICK HERE

COVID-19 Relief Resources

NORD COVID-19 Rare Disease Premium and Medical Assistance Program

Contact: 203.242.0497 Email: [email protected]

Additional COVID-19 Relief Assistance Programs

I Stay Home For Rare
The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.
https://www.istayhomeforrare.org/

Charlene York
Ohio State Ambassador
[email protected]

Sara Sharpe
Community Engagement Liaison
[email protected]

Tiffany Sammons
Community Engagement Liaison
[email protected]

Follow Ohio RAN on Facebook

What's Happening Now?

Please join the Ohio Rare Action Network for our monthly virtual rare discussion groups. They are held on the third Wednesday of every month at 7pm EST. Join rare advocates to discuss challenges rare patients are facing in Ohio and connect with others. Click here to register for the meeting(s).

Our next OH RAN Virtual Event on Wednesday, August 19, 2020 will be about the Ohio STABLE program

Nicholas Hancart is the Public Affairs Manager of the STABLE program through the Ohio Treasurer of State

Description: Find out how Ohio’s STABLE Account can increase the financial independence of people with disabilities by providing a tool to save, invest, and spend personal funds without affecting eligibility for federal or state means-tested benefits programs like SSI or Medicaid. Attendees will gain a full understanding of ABLE Accounts in the life of a person with a disability. Those in attendance will benefit from understanding enrollment, managing an account, spending options, and hearing real examples of success stories through encouraged audience interaction. Basic information, practical application, and technical expertise will be shared by STABLE Account staff, the administrators of the nation’s most-used ABLE Program. Click here to register for the meeting(s).

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

Learn Key Issues

Do Something

Share Your Event

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.