Ohio

What's Happening Now?

Please join NORD’s Ohio Rare Action Network (RAN) for our upcoming Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all – you do not have to be a RAN member.

Wednesday, June 16, 2021 at 07:00 PM
Wednesday, August 18, 2021 at 07:00 PM
Wednesday, October 20, 2021 at 07:00 PM
Wednesday, December 15, 2021 at 07:00 PM

Click Here to Register for the Virtual Rare Discussion Groups

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

Tiffany Sammons
Ohio Volunteer State Ambassador
[email protected]

Sara Sharpe
Volunteer Community Engagement Liaison
[email protected]

Follow Ohio RAN on Facebook

Check out the Ohio Rare Disease Day Virtual Event Recording

Ohio Rare Action Network hosted a Rare Disease Day Virtual Event on February 23, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Ohio legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

COVID-19 Resources & Information

State Resource Page

Ohio Department of Health has created this helpful resource website in response to COVID-19.
Please visit: https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home

Cincinnati Area COVID-19 Resource Guide CLICK HERE

Additional resources Cincinnati area CLICK HERE

COVID-19 Relief Resources
NORD COVID-19 Rare Disease Premium and Medical Assistance Program
Contact: 203.242.0497 Email: [email protected]

Additional COVID-19 Relief Assistance Programs
I Stay Home For Rare
The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.
https://www.istayhomeforrare.org/

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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