Ohio

Sara Sharpe
Volunteer State Ambassador

What's Happening Now?

Ohio Rare Action Network Virtual Rare Discussion Groups

Please join NORD’s Ohio Rare Action Network (RAN) Virtual Rare Discussion Group to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns and ask questions. These meetings are open to all, you do not have to be a RAN member.

CLICK HERE TO REGISTER

2022 Ohio Virtual Rare Discussion
Group Schedule

August 17, 2022, at 7:00 PM
September 21, 2022, at 1:00 PM
October 19, 2022, at 7:00 PM
November 16, 2022, at 1:00 PM
December 21, 2022, at 7:00 PM

Join us in Cleveland, Ohio on June 26th!

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

View the Ohio Rare Disease Day Virtual Event Recording

from February 24, 2022

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

Learn Key Issues

Do Something

Share Your Event

State Information

COVID-19 Resources & Information

State Resource Page

Ohio Department of Health has created this helpful resource website in response to COVID-19.
Please visit: https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home

Cincinnati Area COVID-19 Resource Guide CLICK HERE

Additional resources Cincinnati area CLICK HERE

COVID-19 Relief Resources
NORD COVID-19 Rare Disease Premium and Medical Assistance Program
Contact: 203.242.0497 Email: [email protected]

Additional COVID-19 Relief Assistance Programs
I Stay Home For Rare
The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.
https://www.istayhomeforrare.org/