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Charlene York
Ohio State Ambassador
[email protected]

What's Happening Now?

Ohio Rare Disease Day 2020

Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Ohio.

Thursday, February 27, 2020 at 10:00a.m.
Registration opens at 9:00a.m.
Harrington Discovery Institute University Hospitals
11407 Euclid Avenue, Floor 2, Cleveland, Ohio, 44106
There is no cost to participants to attend this event.
Please note: Space is limited. Can’t attend the Rare Disease Day event in person? No worries! We are excited to announce that our event will be shared via Facebook Live. To access Facebook Live tune in at

In partnership with Harrington Discover Institute University Hospitals, Connor B. Judge FoundationMetro Health, Cleveland Clinic and Cleveland Clinic Children’s

State Report Card

In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Jillian Froment, Director

Ohio Department of Insurance
50 West Town Street Third Floor, Suite 300
Columbus, OH 43215


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission


State Health Insurance Consumer Assistance Program


Ombudsman Email: [email protected]
Ombudsman Website

Program Sponsors

NORD Links


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