Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Ohio.
What's Happening Now?
In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
OH RAN hosted a Patient Advocacy & Orphan Drug Workshop on April 13, 2019 in Cincinnati. 15 advocates attended and learned about the the importance of the Orphan Drug Act, how to be effective advocates and connect with other rare families. In addition advocates had the opportunity to speak directly with US Representative Brad Wenstrup and legislative staffers from US Senator Sherrod Brown and US Representatives Warren Davidson and Steve Chabot’s offices, sharing their concerns and asking to support the rare disease community and protect the Orphan Drug Act.
State Report Card
In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Jillian Froment, Director
Ohio Department of Insurance
50 West Town Street Third Floor, Suite 300
Columbus, OH 43215