Volunteer State Ambassador
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Ohio Rare Disease Day Events for 2023
The Ohio Rare Action Network invites you to join us for
Rare Disease Day in Cleveland
Tuesday, February 28, 2023 at 8:30 AM
Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106
You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community! The Ohio Rare Action Network and the Connor B. Judge Foundation will be hosting Ohio Rare Disease Day 2023 in Cleveland on Tuesday, February 28th. Along with NORD, The Connor B. Judge Foundation and The Sumaira Foundation, this year’s event is also hosted and sponsored by the Research Institute for Children’s Health.
The event will include networking, followed by an informational program. The program will include a series of short presentations, which will address the challenges surrounding the diagnosis and treatment of rare diseases and lack of approved treatment options. The program will also feature the patient perspective and highlight advocacy and legislative efforts.
Rare Disease Day at Nationwide Children’s
Tuesday, February 28, 2023 at 4:30 PM – 8:00 PM
Nationwide Children’s, 700 Children’s Dr, Columbus, OH 43205
Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and open to the public.
For more information, visit NationwideChildrens.org/Rare-Disease-Day
For questions, email: [email protected]
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.
Jillian Froment, Director
Ohio Department of Insurance
50 West Town Street Third Floor, Suite 300
Columbus, OH 43215