Ohio

Ohio Rare Disease Day Virtual Event

Tuesday, February 23, 2021
10:00am – 12:00pm EST

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Ohio legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Ohio is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to ensure that the Ohio RDAC is a success.

REGISTER HERE

Charlene York
Ohio State Ambassador
[email protected]

Tiffany Sammons
Ohio State Ambassador
[email protected]

Sara Sharpe
Community Engagement Liaison
[email protected]

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COVID-19 Resources & Information

State Resource Page

Ohio Department of Health has created this helpful resource website in response to COVID-19.
Please visit: https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home

Cincinnati Area COVID-19 Resource Guide CLICK HERE

Additional resources Cincinnati area CLICK HERE

COVID-19 Relief Resources
NORD COVID-19 Rare Disease Premium and Medical Assistance Program
Contact: 203.242.0497 Email: [email protected]

Additional COVID-19 Relief Assistance Programs
I Stay Home For Rare
The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.
https://www.istayhomeforrare.org/

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.