Ohio

Ohio Rare Disease Day Events for 2023

The Ohio Rare Action Network invites you to join us for
Rare Disease Day in Cleveland
Tuesday, February 28, 2023
Registration 8:30a.m. Program from 9:00a.m. – 12:00p.m.
Followed by a networking reception from 12:00p.m.-1:00p.m.
Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106

You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community! The Ohio Rare Action Network and the Connor B. Judge Foundation will be hosting Ohio Rare Disease Day 2023 in Cleveland on Tuesday, February 28th. Along with NORD, The Connor B. Judge Foundation and The Sumaira Foundation, this year’s event is also hosted and sponsored by the Research Institute for Children’s Health.

The event will include networking, followed by an informational program. The program will include a series of short presentations, which will address the challenges surrounding the diagnosis and treatment of rare diseases and lack of approved treatment options. The program will also feature the patient perspective and highlight advocacy and legislative efforts.

Register Here

Rare Disease Day at Nationwide Children’s
Tuesday, February 28, 2023 at 4:30 PM – 8:00 PM
Nationwide Children’s, 700 Children’s Dr, Columbus, OH 43205

Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and open to the public.
For more information, visit NationwideChildrens.org/Rare-Disease-Day
For questions, email: [email protected]