Donate Now

Join RAN

Ohio

Sara Sharpe
Volunteer State Ambassador

[email protected]

What's Happening Now?

Ohio Rare Disease Day Events for 2023

 

The Ohio Rare Action Network invites you to join us for
Rare Disease Day in Cleveland
Tuesday, February 28, 2023 at 8:30 AM
Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106

You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community! The Ohio Rare Action Network and the Connor B. Judge Foundation will be hosting Ohio Rare Disease Day 2023 in Cleveland on Tuesday, February 28th. Along with NORD, The Connor B. Judge Foundation and The Sumaira Foundation, this year’s event is also hosted and sponsored by the Research Institute for Children’s Health.

The event will include networking, followed by an informational program. The program will include a series of short presentations, which will address the challenges surrounding the diagnosis and treatment of rare diseases and lack of approved treatment options. The program will also feature the patient perspective and highlight advocacy and legislative efforts.

Register Here

Rare Disease Day at Nationwide Children’s
Tuesday, February 28, 2023 at 4:30 PM – 8:00 PM
Nationwide Children’s, 700 Children’s Dr, Columbus, OH 43205

Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and open to the public.
For more information, visit NationwideChildrens.org/Rare-Disease-Day
For questions, email: [email protected]

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Ohio’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Ohio, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

COVID-19 Resources & Information

State Resource Page

Ohio Department of Health has created this helpful resource website in response to COVID-19.
Please visit: https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home

Cincinnati Area COVID-19 Resource Guide CLICK HERE

Additional resources Cincinnati area CLICK HERE

COVID-19 Relief Resources
NORD COVID-19 Rare Disease Premium and Medical Assistance Program
Contact: 203.242.0497 Email: [email protected]

Additional COVID-19 Relief Assistance Programs
I Stay Home For Rare
The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.
https://www.istayhomeforrare.org/

Jillian Froment, Director

Ohio Department of Insurance
50 West Town Street Third Floor, Suite 300
Columbus, OH 43215

614-644-2673

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

1-800-686-1526

State Health Insurance Consumer Assistance Program

614-644-2651

Ombudsman Email: [email protected]
Ombudsman Website

NORD Links

NORD Logo

Running4Rare Logo