Please join NORD’s New York Rare Action Network (RAN) for our upcoming Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all–you do not have to be a RAN member.
Tuesday, June 15, 2021 at 6:00pm EST
Click Here to Register for June 15th Virtual Discussion Group
Tuesday, August 24, 2021 at 6:00pm EST
Click Here to Register for April 20th Virtual Discussion Group