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Rare Action Network > Resources for Advocates > State Profiles > New York
New York
New York Rare Disease Day Virtual Event
Thursday, February 25, 2021
6:30pm – 8:00pm EST
New York Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New York legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the New York Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.
What's Happening Now?
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New York, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
State Information
Linda Lacewell, Superindendent
New York State Dept. of Financial Services
One State Street
New York, New York 10004-1511
212-709-3500
In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.
800-342-3736
State Health Insurance Consumer Assistance Program
Community Service Society: Community Health Advocates
105 East 22nd Street
New York, NY 10010
Consumer Assistance Program Email: [email protected]
888-614-5400
Marketplace Structure: State
Marketplace Contact: [email protected]
855.355.5777
TTY: 800.662.1220
Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost
Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefit
Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website
Find your Provider
Medicaid
New York State Department of Health
Corning Tower
Empire State Plaza
Albany, NY 12237
Email for Assistance: [email protected]
1-800-541-2831
Medicaid Website
Eligibility Requirements
Medicaid Appeal Process
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources
