NORD New York Rare Action Network Rare Disease Day
Sunday, February 26, 2023 from 3:30 pm – 5:00 pm
THIS IS A VIRTUAL EVENT
One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a Virtual State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.
