New York Rare Action Network
Virtual Rare Discussion Group
Monday, June 13, 2022 from 6:30 pm -7:30 pm
Please join NORD’s New York Rare Action Network (RAN) Virtual Rare Discussion Group on Monday, June 13, 2022 from 6:30 pm -7:30 pm. The meeting will be an opportunity to hear rare stories and share experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns and ask questions. These meetings are open to all, you do not have to be a RAN member.