New York

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New York Rare Action Network
Virtual Rare Discussion Group

Monday, June 13, 2022 from 6:30 pm -7:30 pm

Please join NORD’s New York Rare Action Network (RAN) Virtual Rare Discussion Group on Monday, June 13, 2022 from 6:30 pm -7:30 pm. The meeting will be an opportunity to hear rare stories and share experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns and ask questions. These meetings are open to all, you do not have to be a RAN member.

CLICK HERE TO REGISTER

RAN_Megephone_RGB Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.

Mary Wootten
New York State Ambassador
[email protected]

Sofia Horan

New York State Ambassador
[email protected]

Jessica Asante
Community Engagement Liaison
[email protected]

Follow New York RAN on Facebook

COVID-19 Resources and Information

State Resource Page

The state of New York has created this helpful resource website in response to COVID-19.

https://coronavirus.health.ny.gov/home

View the New York Rare Disease Day Virtual Event Recording

from February 27, 2022

In order to make meaningful change in the lives of rare disease patients and their families in the state of New York, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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