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Rare Action Network > Resources for Advocates > State Profiles > New York
New York
What's Happening Now?
New York Rare Action Network Meet & Greet on Saturday, May 18, 2019 from 10:30a.m.-1:00p.m. at the Guilderland YMCA, Guilderland, NY. This isan opportunity to learn about our efforts here in New York state. Connect with other rare patients, families and supporters. You will hear from your New York Rare Action Network Volunteer State Ambassador, Mary Wootten and other rare disease organizations from New York. CLICK HERE TO REGISTER
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New York’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in New York.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New York, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
State Information
Linda Lacewell, Superindendent
New York State Dept. of Financial Services
One State Street
New York, New York 10004-1511
212-709-3500
In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.
800-342-3736
State Health Insurance Consumer Assistance Program
Community Service Society: Community Health Advocates
105 East 22nd Street
New York, NY 10010
Consumer Assistance Program Email: cha@cssny.org
888-614-5400
Marketplace Structure: State
Marketplace Contact: exchange@health.state.ny.us
855.355.5777
TTY: 800.662.1220
Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost
Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefit
Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website
Find your Provider
Medicaid
New York State Department of Health
Corning Tower
Empire State Plaza
Albany, NY 12237
Email for Assistance: Medicaid@health.state.ny.us
1-800-541-2831
Medicaid Website
Eligibility Requirements
Medicaid Appeal Process
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources
