New Jersey State Ambassador
What's Happening Now?
Please join New Jersey Rare Action Network on Monday, February 24, 2020 from 8:30am-12:30pm at the New Jersey State Museum, Riverside Court (1st Floor), 205 West State Street, Trenton, New Jersey. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New Jersey.
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Jersey’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Jersey.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New Jersey, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
Marlene Caride, Commissioner
State of New Jersey
Department of Banking and Insurance
20 West State Street PO Box 471
Trenton, New Jersey 08625-0325