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New Jersey

Patricia Geurds
Community Engagement Liaison
[email protected]

What's Happening Now?

NORD New Jersey Rare Action Network Rare Disease Day
Tuesday, February 28, 2023 from 5:00 pm – 8:00 pm

Make-A-Wish Castle, The Samuel & Josephine Plumeri Wishing Place
1384 Perrineville Road, Monroe Township, NJ 08831

One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Jersey’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Jersey.

COVID-19 Resources & Information

State Resource Page

The state of New Jersey has created this helpful resource website in response to COVID-19.

In order to make meaningful change in the lives of rare disease patients and their families in the state of New Jersey, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Marlene Caride, Commissioner

State of New Jersey
Department of Banking and Insurance
20 West State Street PO Box 471
Trenton, New Jersey 08625-0325


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

State Health Insurance Consumer Assistance Program

The Office of the Insurance Ombudsman
NJ Department of Banking and Insurance
20 West State Street
PO Box 472
Trenton NJ 08625-0472


Ombudsman Email: [email protected]
Ombudsman Website

NORD Links


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