New Hampshire

Please Join us for two Rare Disease Day Events!

Rare Disease Day Advocacy Event at the State Capitol

Wednesday, February 19, 2020 from 11:00am-2:00pm

New Hampshire State House, Cafeteria

107 N Main St, Concord, NH 03303
There is no cost to participants to attend this event.

Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with New Hampshire legislators the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New Hampshire.

CLICK HERE TO REGISTER FOR THE STATE CAPITOL EVENT

Kimberly Pang
New Hampshire State Ambassador
[email protected]

Krista Gilbert
New Hampshire Community Engagement Liaison
[email protected]

Follow New Hampshire RAN on Facebook

Rare Disease Day Lunch at the Common Man Restaurant

Saturday, February 29, 2020 from 11:00am-2:00pm

The Common Man Restaurant, 25 Water St, Concord, NH 03301

There is no cost to participants to attend this event.

Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to learn about the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New Hampshire.

CLICK HERE TO REGISTER FOR THE LUNCHEON

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Hampshire’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

In order to make meaningful change in the lives of rare disease patients and their families in the state of New Hampshire, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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State Report Card

In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

More Information