New Hampshire

What's Happening Now?

Please join NORD’s New Hampshire Rare Action Network (RAN) for our upcoming Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all – you do not have to be a RAN member.

Tuesday, June 15, 2021 at 6:00pm EST
Click Here to Register for the June 15th Virtual Discussion Group

Heather Dainiak
New Hampshire State Ambassador
[email protected]

Krista Gilbert
New Hampshire State Ambassador
[email protected]

Follow New Hampshire RAN on Facebook

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Hampshire’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

Check out the New Hampshire Rare Disease Day Virtual Event Recording

New Hampshire Rare Action Network hosted a Rare Disease Day Virtual Event on February 24, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated New Hampshire legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

COVID-19 Resources & Information

State Resource Page

The state of New Hampshire has created this helpful
resource website in response to COVID-19.

https://www.nh.gov/covid19/

In order to make meaningful change in the lives of rare disease patients and their families in the state of New Hampshire, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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