New Hampshire

Kimberly Pang
New Hampshire State Ambassador
kimberly.pang@rareaction.org

Patient Advocacy and Orphan Drug Workshop 

The National Organization for Rare Disorders invites all rare disease advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act.

The Centennial Hotel from 9:00am to 3:00 pm on Friday, October 5, 2018, in Concord, New Hampshire. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants. Light breakfast and lunch will be provided. CLICK HERE to Register Today!

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Hampshire’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.

In order to make meaningful change in the lives of rare disease patients and their families in the state of New Hampshire, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.