Please join New Hampshire Rare Action Network for Rare Disease Day Advocacy Event on March 7, 2019 from 11:00am-2:00pm at New Hampshire State Capitol, Cafeteria, 107 N Main St, Concord, NH 03303. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New Hampshire.
What's Happening Now?
Join us for New Hampshire Rare Disorders Association’s 3rd Annual Hoofbeats 5K to raise awareness of rare disorders!
Saturday, June 1, 2019 from 9:00am-11:00am. NHTI,
Concord’s Community College, 31 College Dr.,
Concord, NH 03301
This is a fun family event for all abilities. We hope to see you there!
Register at http://www.lightboxreg.com/
For more information about NHRDA visit nhraredisordersassociation.org
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Hampshire’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Hampshire.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New Hampshire, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Roger A. Sevigny, Commissioner
New Hampshire Insurance Department
21 South Fruit Street, Suite 14
Concord, New Hampshire 03301
Office of Medicaid Business & Policy
NH Department of Health & Human Services
129 Pleasant Street
Concord, NH 03301
800-852-3345, ext 4344 or 603-271-4344
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources