Minnesota

Please join the Minnesota Rare Action Network for our monthly virtual rare discussion groups. They are held on the first Thursday of every month at 3pm CST. Join rare advocates to discuss challenges rare patients are facing in Minnesota and connect with others. Click here to register for the meeting(s).

Erica Barnes
Minnesota State Ambassador
[email protected]

Maria Null
Community Engagement Liaison
[email protected]

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Minnesota’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Minnesota.

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.