Please join Minnesota Rare Action Network for Rare Disease Day Advocacy Event on March 12, 2019 from 1:00pm-2:00pm at Minnesota State Capitol, Rotunda, 75 Rev Dr Martin Luther King Jr Boulevard, St Paul, MN 55155. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Minnesota.
This is YOUR DAY to make your voice heard & to tell YOUR stories! Let lawmakers know how important good health care is to us! This event is in partnership with the Hemophilia Foundation of Minnesota/Dakotas annual Rally for Bleeding Disorders and Rare Disease Awareness Day at the capitol! There is no cost to participants to attend this event.