Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Massachusetts’ Rare Action Network to attend your event? Contact your State Ambassadors today and learn more. Please check back regularly for news of upcoming events and activities in Massachusetts.
What's Happening Now?
Harvard Undiagnosed Disease Network
The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.
Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit: https://undiagnosed.hms.harvard.edu/
In order to make meaningful change in the lives of rare disease patients and their families in the state of Massachusetts, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Gary D. Anderson, Acting Commissioner
Office of Consumer Affairs and Business Regulation (OCABR)
Massachusetts Division of Insurance
1000 Washington Street, 8th Floor
Boston, Massachusetts 02118-6200
Complaint Submission- Mail this form to:
1000 Washington Street
Boston, MA 02118
Email for Assistance: firstname.lastname@example.org
617-521-7794 or 877-563-4467
State Health Insurance Consumer Assistance Program
Kathryn Bicego, Consumer Assistance Program Manager
Massachusetts Consumer Assistance Program
30 Winter Street, 10th Floor
Boston, MA 02108
617-350-7279 or 800-272-4232
MassHealth Enrollment Center – Chelsea
45-47 Spruce Street
Chelsea, MA 02150
Email for Assistance: email@example.com
1-888-665-9993 or 1-888-665-9997
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources