Massachusetts

Sofia Horan

Massachusetts State Ambassador
[email protected]

What's Happening Now?

RAN_Megephone_RGB Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Massachusetts’ RareAction Network to attend your event? Contact your State Ambassadors today and learn more. Please check back regularly for news of upcoming events and activities in Massachusetts.

COVID-19 Resources & Information

State Resource Page

The Massachusetts Department of Public Health has created this helpful
resource website in response to COVID-19.
CLICK HERE

Harvard Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit: https://undiagnosed.hms.harvard.edu/

In order to make meaningful change in the lives of rare disease patients and their families in the state of Massachusetts, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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State Information

Department of Insurance

Gary D. Anderson, Acting Commissioner

Office of Consumer Affairs and Business Regulation (OCABR)
Massachusetts Division of Insurance
1000 Washington Street, 8th Floor
Boston, Massachusetts 02118-6200

617-521-7794