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Greta Gladney
Louisiana State Ambassador
[email protected]

Louisiana Rare Disease Day Virtual Event

Saturday, February 27, 2021
3:00pm – 4:30pm CST

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Louisiana legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Louisiana by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.


Louisiana COVID-19 Resources & Information

COVID-19 State Resources
Louisiana Department of Health has created this helpful resource website in response to COVID-19.

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Louisiana’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Louisiana.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Louisiana, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

James J. Donelon, Commissioner

Louisiana Department of Insurance
PO Box 94214
Baton Rouge, Louisiana 70804-9214

Street Address: 1702 N. 3rd Street Baton Rouge, Louisiana 70802


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

800-259-5300 or 225-342-5900
Email for Assistance: [email protected]

State Health Insurance Consumer Assistance Program
Ron C. Henderson, Deputy Commissioner of Consumer Advocacy

Consumer Assistance Program Email: [email protected]

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


P.O. Box 91278
Baton Rouge, LA 70821-9278

Email for Assistance: [email protected]

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process (Appeals can also be covered through Marketplace)

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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