Kansas State Ambassador
What's Happening Now?
Please join the Kansas Rare Action Network for our monthly virtual rare discussion groups. Join rare advocates to discuss challenges rare patients are facing in Kansas and connect with others. Below are the dates and registration links for the meetings.
Friday, September 25, 2020 at 7:00pm CST **CANCELLED
Wednesday, October 28, 2020 at 7:00pm CST Register for the 10/28/2020 meeting here
Thursday, November 19, 2020 at7:00pm CST Register for the 11/19/2020 meeting here
Thursday, December 17, 2020 CST Register for the 12/17/2020 meeting here
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Kansas’ Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Kansas.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Kansas, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.