Indiana

Sunny Ammerman
Indiana Volunteer State Ambassador
[email protected]

Please join NORD’s Indiana Rare Action Network (RAN) for our monthly Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all – you do not have to be a RAN member.

Wednesday, June 30, 2021 at 7:00 pm EST
Wednesday, July 28, 2021 at 7:00 pm EST
Wednesday, August 25, 2021 at 7:00 pm EST
Wednesday, September 29, 2021 at 7:00 pm EST
Wednesday, October 27, 2021 at 7:00 pm EST
Wednesday, November 17, 2021 at 7:00 pm EST
Wednesday, December 29, 2021 at 7:00 pm EST

Click Here to Register for the Indiana Virtual Rare Discussion Group Meetings

Check out the Indiana Rare Disease Day Virtual Event Recording

Indiana Rare Action Network hosted a Rare Disease Day Virtual Event on February 24, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Indiana legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

COVID-19 Resources & Information

State Resource Page

The Indiana State Department of Health has created this helpful resource website in response to COVID-19.

https://coronavirus.in.gov/

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Indiana’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Indiana.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Indiana, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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