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Check out the Indiana Rare Disease Day Virtual Event Recording

Indiana Rare Action Network hosted a Rare Disease Day Virtual Event on February 24, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Indiana legislators and the general public on the challenges faced by rare disease patients and their families.


Jon Toumey
Indiana State Ambassador
[email protected]

Sunny Ammerman
Indiana Community Engagement Liaison
[email protected]

COVID-19 Resources & Information

State Resource Page

The Indiana State Department of Health has created this helpful resource website in response to COVID-19.

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Indiana’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Indiana.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Indiana, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Stephen W. Robertson, Commissioner

Indiana Department of Insurance
311 W. Washington Street
Suite 300
Indianapolis, Indiana 46204-2787


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

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NORD Links


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