Donate Now

Join RAN


COVID-19 Resources & Information

State Resource Page

The Indiana State Department of Health has created this helpful resource website in response to COVID-19.

Jon Toumey
Indiana State Ambassador
[email protected]

Sunny Ammerman
Indiana Community Engagement Liaison
[email protected]

What's Happening Now?

Please join the  Indiana Rare Action Network for our bi-monthly virtual rare discussion groups. Join rare advocates to discuss challenges rare patients are facing in Indiana and connect with others. Below are the dates and registration links for the meetings.

Wednesday, September 23, 2020 at 7:00pm EST Register for the 9/23/2020 meeting here
Wednesday, November 18, 2020 at 7:00pm EST Register for the 11/18/2020 meeting here

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Indiana’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Indiana.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Indiana, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Stephen W. Robertson, Commissioner

Indiana Department of Insurance
311 W. Washington Street
Suite 300
Indianapolis, Indiana 46204-2787


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

NORD Links


Rare Disease Day Logo

Running4Rare Logo