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Illinois

Maria Bellefeuille
Illinois State Ambassador
[email protected]

COVID-19 Resources & Information

Rare Action Network (RAN) COVID-19 Virtual Discussion Group

Please join us for a COVID-19 Virtual Discussion Group on May 13, 2020 at 1pm CT.  This will be an opportunity for the Illinois rare disease community to express concerns, ask questions, and hear updates from NORD.  Alone we are rare, together we are strong.  Register here.


State Resource Page

The Illinois Department of Public Health has created this helpful resource website in response to COVID-19.

https://www.dph.illinois.gov/covid19/covid19-statistics

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact your Illinois State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Jennifer Hammer, Director

Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001

217-782-4515

[email protected]

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

866-445-5364

State Health Insurance Consumer Assistance Program
877-527-9431

Ombudsman Website

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