Illinois State Ambassador
What's Happening Now?
Please join Illinois Rare Action Network for Rare Disease Day Advocacy Event on February 27, 2019 in Springfield, IL. 10am-11:30am: Breakfast and Advocacy Training Workshop at The Inn at 835, 835 South 2nd Street, Springfield, IL 62704. 11:45am-3:00pm: Legislative Visits at the Illinois State Capitol, 410 S. Second St., Springfield, IL 62704
Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Illinois. CLICK HERE TO REGISTER
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact your Illinois State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Jennifer Hammer, Director
Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001