Donate Now

Join RAN

Illinois

Dr. Stacey J. Feuer, PsyD, MLD
Illinois State Ambassador

[email protected]

What's Happening Now?

Please join NORD’s Illinois Rare Action Network (RAN)  for our upcoming Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all–you do not have to be a RAN member.

Tuesday, June 29, 2021 at 7:00pm CST
Click Here to Register for the virtual discussion group

Check out the Illinois Rare Disease Day Virtual Event Recording

Illinois Rare Action Network hosted a Rare Disease Day Virtual Event on February 26, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Illinois legislators and the general public on the challenges faced by rare disease patients and their families.

COVID-19 Resources & Information

State Resource Page

The Illinois Department of Public Health has created this helpful resource website in response to COVID-19.

https://www.dph.illinois.gov/covid19/covid19-statistics

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact your Illinois State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Jennifer Hammer, Director

Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001

217-782-4515

[email protected]

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

866-445-5364

State Health Insurance Consumer Assistance Program
877-527-9431

Ombudsman Website

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo