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Illinois

Maria Bellefeuille
Illinois State Ambassador
[email protected]

What's Happening Now?

Please join us for Illinois Rare Disease Day on Wednesday, March 4, 2020 at the State House Inn, 101 E Adams St, Springfield, IL 62701 from 9:00am-12:00pm. Join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with Illinois Legislators the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Illinois. Following the presentations and lunch there will be an opportunity for advocates to visit legislators offices and speak with them and/or their staffers.

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact your Illinois State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Jennifer Hammer, Director

Illinois Department of Insurance
320 W. Washington Street
Springfield, Illinois 62767-0001

217-782-4515

[email protected]

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

866-445-5364

State Health Insurance Consumer Assistance Program
877-527-9431

Ombudsman Website

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