Illinois State Ambassador
What's Happening Now?
Please join the Illinois Rare Action Network for our monthly virtual rare discussion groups. They are held on the fourth Wednesday of every month. Join rare advocates to discuss challenges rare patients are facing in Minnesota and connect with others. Click here to register for the meeting(s).
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Illinois’ Rare Action Network to attend your event? Contact your Illinois State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Illinois.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Illinois, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.