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What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Florida’s RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Florida.

COVID-19 Resources & Information

State Resource Page

The Florida Department of Health has created this helpful resource
website in response to COVID-19.

Jhoanny Cardenas
Florida State Co-Ambassador
[email protected]

Anne Rugari
Florida State Co-Ambassador
[email protected]

Fran Hokkanen
Florida Community Engagement Liaison
[email protected]

Check out the Florida Rare Disease Day Virtual Event Recording

Florida RareAction Network hosted a Rare Disease Day Virtual Event on February 26, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Florida legislators and the general public on the challenges faced by rare disease patients and their families.


Florida needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Florida, please contact your State Ambassador, Fran Hokkanen and Jhoanny Cardenas.

State Information

David Altmaier, Commissioner

Office of Insurance Regulation
The Larson Building
200 E. Gaines Street, Rm 101A
Tallahassee, Florida 32399-0305


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]
1-877-MY-FL-CFO (1-877-693-5236)
Out of State Callers: 850-413-3089

NORD Links


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