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Florida

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Florida’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Florida.

Fran Hokkanen
Florida State Co-Ambassador
[email protected]

Jhoanny Cardenas
Florida State Co-Ambassador
[email protected]

Florida needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Florida, please contact your State Ambassador, Fran Hokkanen and Jhoanny Cardenas.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

David Altmaier, Commissioner

Office of Insurance Regulation
The Larson Building
200 E. Gaines Street, Rm 101A
Tallahassee, Florida 32399-0305

1-877-693-5236

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]
1-877-MY-FL-CFO (1-877-693-5236)
Out of State Callers: 850-413-3089

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