Delaware

Stephanie Cozine
Delaware State Ambassador
[email protected]

Irfan Patel
Delaware State Ambassador
[email protected]

Check out the Delaware Rare Disease Day Virtual Event Recording

Delaware RareAction Network hosted a Rare Disease Day Virtual Event on February 28, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Delaware legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

COVID-19 Resources & Information

State Resource Page

The state of Delaware has created this helpful resource website in response to COVID-19.

https://coronavirus.delaware.gov/

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Delaware’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Delaware.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Delaware, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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