Delaware

Stephanie Cozine
Delaware State Ambassador
[email protected]

Delaware Rare Action Network Virtual Event

Sunday February 28, 2021
1:00pm – 2:00pm EST

Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Delaware legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Delaware by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.

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COVID-19 Resources & Information

State Resource Page

The state of Delaware has created this helpful resource website in response to COVID-19.

https://coronavirus.delaware.gov/

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Delaware’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Delaware.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Delaware, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.