Delaware

Stephanie Cozine
Delaware State Ambassador
[email protected]

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COVID-19 Resources & Information

State Resource Page

The state of Delaware has created this helpful resource website in response to COVID-19.

https://coronavirus.delaware.gov/

What's Happening Now?

Please join the Delaware Rare Action Network for our monthly virtual rare discussion groups. They are held on the third Thursday of every month at 1:00pm EST. Join rare advocates to discuss challenges rare patients are facing in Delaware and connect with others. Click here to register for the meeting(s).

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Delaware’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Delaware.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Delaware, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

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State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.