Donate Now

Join RAN

California

Zhanzhi “Mike” Hu
California State Ambassador
[email protected]ion.org

What's Happening Now?

UCLA RARE DISEASE DAY 2022
Friday, February 25, 2022, from 1:00 pm– 3:00 pm PT

This free, virtual community event will inform audiences on how industry, academia, and advocacy organizations can work together to develop novel therapies for rare disease patients and understand the emerging challenges to accelerating progress for ever-smaller rare disease markets. Hear from leading experts in rare disease research & patient care from the California Center for Rare Diseases at UCLA.

This is a free event but you must register to receive the Zoom Webinar login details.

REGISTER NOW

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s RareAction Network to attend your event? Contact us today and learn more. Please check back regularly for news of upcoming events and activities in California.

COVID-19 Resources & Information

State Resource Page

The state of California has created this helpful resource website in response to COVID-19.

https://covid19.ca.gov/

Stanford & UCLA
Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit:

Stanford –  https://undiagnosed.stanford.edu/
UCLA – genetics.ucla.edu/udn

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Ricardo Lara, Commissioner

California Department of Insurance
300 Capitol Mall, Suite 1700
Sacramento, California 95814

916-492-3500

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
1-800-927-HELP (4357) or 1-213-897-8921

State Health Insurance Consumer Assistance Program

California Department of Insurance
Office of the Ombudsman
300 Capital Mall Suite 1600
Sacramento California, 95814

916- 492-3545

Marketplace Structure: State

1-800-300-1506
TTY: 1-888-889-4500
Exchange Email: [email protected]

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile

State Reforum State Profile

Medicaid

1501 Capitol Avenue
Sacramento, CA 95814

916-552-9200

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links

NORD Logo

Running4Rare Logo