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What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s Rare Action Network to attend your event? Contact us today and learn more. Please check back regularly for news of upcoming events and activities in California.

Earl Cole
California State Ambassador
[email protected]

Zhanzhi “Mike” Hu
California State Ambassador
[email protected]

Stanford & UCLA
Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit:

Stanford –

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Ricardo Lara, Commissioner

California Department of Insurance
300 Capitol Mall, Suite 1700
Sacramento, California 95814


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
1-800-927-HELP (4357) or 1-213-897-8921

State Health Insurance Consumer Assistance Program

California Department of Insurance
Office of the Ombudsman
300 Capital Mall Suite 1600
Sacramento California, 95814

916- 492-3545

Marketplace Structure: State

TTY: 1-888-889-4500
Exchange Email: [email protected]

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile

State Reforum State Profile


1501 Capitol Avenue
Sacramento, CA 95814


Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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