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What's Happening Now?

Please join us Sunday, March 1, 2020 for California Rare Disease Day with the L.A. Clippers at the Staples Center, 1111 S Figueroa Street, Los Angeles. L.A. Clippers present NORD as Non-Profit of the game. Tickets are available for $70 and a portion of the proceeds will go directly to help NORD fight rare diseases. Doors open at 11:00am and tip off is at 12:30pm.

Get Your Tickets Here

Earl Cole
California State Ambassador
[email protected]

Zhanzhi “Mike” Hu
California State Ambassador
[email protected]

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s Rare Action Network to attend your event? Contact us today and learn more. Please check back regularly for news of upcoming events and activities in California.

Stanford & UCLA
Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit:

Stanford –

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Ricardo Lara, Commissioner

California Department of Insurance
300 Capitol Mall, Suite 1700
Sacramento, California 95814


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
1-800-927-HELP (4357) or 1-213-897-8921

State Health Insurance Consumer Assistance Program

California Department of Insurance
Office of the Ombudsman
300 Capital Mall Suite 1600
Sacramento California, 95814

916- 492-3545

Marketplace Structure: State

TTY: 1-888-889-4500
Exchange Email: [email protected]

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile

State Reforum State Profile


1501 Capitol Avenue
Sacramento, CA 95814


Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Program Sponsors

NORD Links


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