California

Victoria Arreola
California Volunteer Community Ambassador
[email protected]

What's Happening Now?

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Rare Mother’s Day Brunch, Sunday, May 11, 2024 from 10:00 am -1:00 pm
Join us for a Special Tea Brunch honoring rare moms! This event is free for mothers of individuals living with rare diseases.
Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566
REGISTER HERE

RAN_Megephone_RGB Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s RareAction Network to attend your event? Contact us today and learn more. Please check back regularly for news of upcoming events and activities in California.

COVID-19 Resources & Information

State Resource Page

The state of California has created this helpful resource website in response to COVID-19.

https://covid19.ca.gov/

Stanford & UCLA
Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit:

Stanford – https://undiagnosed.stanford.edu/
UCLA – genetics.ucla.edu/udn

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.

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