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Melinda Burnworth
Arizona State Ambassador

What's Happening Now?

Please join Arizona Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 11:30am-2:00pm at the Arizona State Capitol, 1700 W. Washington, Phoenix, AZ. (Rare advocates to meet on the brick pavers in front of the golden dome at the Arizona State Capitol Museum near monument marker E, Congressional Medal of Honor Recipients). During the event, advocates will have the opportunity to network with other rare disease patients, caregivers and other health care advocates. In addition, individuals will visit the Executive Office of the Governor to pick up the Rare Disease Day proclamation signed by Douglas A. Ducey. The group will attend the opening session of the afternoon meetings of the Arizona State Legislature to receive formal recognition as rare disease advocates in the Arizona House of Representatives and Arizona State Senate. The Rare Disease Day proclamation will be read aloud in both chambers. Upon recognition and inaugural reading of the proclamation, the group will exit the Public Gallery and continue networking and sharing about rare. CLICK HERE TO REGISTER

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Arizona’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Arizona.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Arizona, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Leslie R. Hess, Interim Director

Arizona Department of Insurance
2910 North 44th Street, Suite 210
Phoenix, Arizona 85018-7269


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission – Mail this form to:

Consumer Affairs Division
Arizona Department of Insurance
2910 N. 44th Street, Ste. 210
Phoenix, AZ 85018-7269

Email for Assistance:
602-364-2499 or 800-325-2548 (in Arizona but outside Phoenix)

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