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Melinda Burnworth
Arizona State Ambassador
[email protected]

Arizona Rare Disease Day Virtual Event

Wednesday, February 24, 2021
4:00pm – 5:00pm MST

Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Arizona legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Arizona by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.


Arizona COVID-19 Resources & Information

Rare Action Network (RAN) COVID-19 Virtual Discussion Group

Please join us for a COVID-19 Virtual Discussion Group on May 27, 2020 at 6:00pm PST. This will be an opportunity for the Arizona rare disease community to express concerns, ask questions, and hear updates from NORD. Alone we are rare, together we are strong. Register here.

COVID-19 State Resources

Arizona Department of Health Services has created this helpful resource website in response to COVID-19.

Arizona Stay Home, Stay Healthy, Stay Connected

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Arizona’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Arizona.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Arizona, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Keith A. Schraad, Interim Director

Arizona Department of Insurance
2910 North 44th Street, Suite 210
Phoenix, Arizona 85018-7269


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission – Mail this form to:

Consumer Affairs Division
Arizona Department of Insurance
2910 N. 44th Street, Ste. 210
Phoenix, AZ 85018-7269

Email for Assistance: [email protected]
602-364-2499 or 800-325-2548 (in Arizona but outside Phoenix)

NORD Links


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