Rare Action Road Tour Takes on Georgia

Greetings from Atlanta, Georgia.

I am happy to introduce NORD’s State Ambassador for Georgia, Beth Nguyen. Beth is a registered nurse and Executive Director of Worldwide Syringomyelia & Chiari Task Force (a NORD member organization).  As a NORD State Ambassador, Beth is hoping to advance provider education for Syringomyelia and all rare diseases.

Beth will be working to support NORD’s launch of it’s first ever State Progress Report this fall (more on this to come). In addition, she will be assisting in the coordination of 2016 Rare Disease Day Activities next February. If you’re interested in either of these projects, or would simply like to collaborate with Beth and NORD on advocacy, feel free to reach out to her at [email protected], or by phone at (618) 977-6119.

Georgia State House

Next stop: Tallahassee, FL and then on to Alabama!