RareAction Network
Don’t see a Rare Disease Day event near you? Hosting an event? Please visit www.rarediseaseday.us to learn what other events are happening around the country or to submit your events
NORD Community Conversation Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child June 27, 2024 7:00 p.m. EST - 8:15 p.m. EST Virtual - Zoom Join us for an engaging discussion where community members can explore a comprehensive and supportive discussion. Hear from single rare parents about tools, resources, and information they […]
Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with rare diseases. Please RSVP by May 5th; registration is required, click here to register. Location: Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566
Friday, March 1, 2024, 4:30 PM - 8:00 PM Nationwide Children's Hospital Education Center, Columbus, OH Credits Non-Physician Attendance (5.00 hours), Community Program Attendance (5.00 hours), Non-Accredited (5.00 hours) Overview More than 300 million people in the world are affected by a rare disease. Rare is everywhere. As a Rare Disease Center of Excellence, Nationwide Children's is […]
