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March 2021

Utah Rare Disease Day Virtual Event

March 2 @ 12:00 pm - 1:30 pm

Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Utah legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Utah Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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New Jersey Rare Disease Day Virtual Event

March 4 @ 10:00 am - 12:00 pm

New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New Jersey legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where New Jersey is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC…

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