Archives

Wednesday, March 4, 2020 from 6:00pm – 8:00pm  The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and all stake holders at this important event to learn about the challenges rare disease patients face and learn how you can make a […]

Illinois Rare Disease Day Wednesday, March 4, 2020 from 9:00am-12:00pm State House Inn, 101 E Adams St, Springfield, IL 62701 Join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss with Illinois Legislators the challenges rare disease patients face and learn how you can make a difference in the lives […]

California Rare Action Network Rare Disease Day 2020 Sunday, March 1 at 12:30pm Los Angeles Clippers present NORD as Non-Profit of the game at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015 Tickets are available for $70 and a portion of the proceeds will go directly to help NORD fight rare diseases. […]

Let’s Glow! Join Be Fierce Foundation for a one-of-a-kind blacklight family-friendly party to help bring awareness to kids and families battling rare diseases. Feb. 29, 2020 is Rare Disease Day, so we’re going big for FIERCE kids! Wear white…neon…or anything that glows as we rock The DoSeum. Snacks, sweets and activities will be planned throughout […]

ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing prizes from 5:30pm – 11pm. All ages are welcome and $10 at the door!  Proceeds to benefit the National Organization for Rare Disorders and the […]

Arkansas Rare Action Network Rare Disease Day Saturday, February 29, 2020 Arkansas College of Osteopathic Medicine,  7000 Chad Colley Blvd, Fort Smith, AR 72916 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face and learn how you can make a difference […]

Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to participants to attend this event. Wisconsin Rare Action Network invites you to join patients, families, caregivers, medical professionals and industry representatives at this important event […]

Rare Disease Day Lunch at the Common Man Restaurant  Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to participants to attend this event. Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at […]

Saturday, February 29, 2020 from 11:00am – 2:30pm  Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day of the Year (February 29th) to celebrate people with rare disorders and advocate on their behalf at Rare Disease Day 2020. Rare Disease Day is […]

JOIN US TO RAISE RARE DISEASE AWARENESS Saturday, February 29, 2020 10:30 a.m. – 2 p.m. Sugar Land Town Square Located at Highway 6 and U.S. 59, Sugar Land, TX 77479 Family Friendly Event with Live Music, Games & More According to the National Institutes of Health (NIH), a disease is rare if it affects […]