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RareAction Network > Rare Disease Day
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January 21, 2020
Friday, February 21, 2020 Grant Sawyer State Office Building, Atrium, 555 E Washington Ave #5100, Las Vegas, NV. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at […]
Minnesota Rare Disease Day at the University of Minnesota 2020
January 17, 2020
The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m. McNamara Alumni Center, 200 SE Oak St, […]
Oklahoma Rare Disease Day 2020
January 14, 2020
Saturday, February 29, 2020 from 11:00am – 2:30pm Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day […]
Massachusetts Rare Disease Day Community Event 2020
Wednesday, March 4, 2020 from 6:00pm – 8:00pm The Pollard Library, 401 Merrimack St, Lowell, MA 01852 Massachusetts RareAction Network invites you to connect with patients, families, caregivers, medical professionals […]
MassBio Massachusetts Rare Disease Day 2020
Friday, February 28, 2020 from 9:30am – 12:30pm Omni Parker House, 60 School Street, Boston, MA 02108 The last day of February has been designated as Rare Disease Day in […]
Kentucky Rare Disease Day 2020
January 13, 2020
February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky RareAction Network patients, families, caregivers, medical professionals, industry representatives and state legislators […]
Rock The Causebah Concert Fundraiser in Austin, Texas
ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing […]
Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to […]
New York Rare Disease Day 2020 at the Capitol
January 9, 2020
Thursday, February 27, 2020 from 9:00am – 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to […]
Race for Ryland 5K Lace up your shoes and come run (walk) with us in to help raise awareness for rare diseases/disorders and honor our Rare Warrior Ryland Grace, born […]
