Being Named State Ambassador
August 23, 2017
To help drive the efforts of the RareAction Network℠, NORD launched the State Ambassador Program. State Ambassadors are volunteers in a leadership position responsible for establishing and building a strong […]
Advocacy Alert: Illinois Rare Disease Commission Bill
July 15, 2016
UPDATE: July 11, 2016 Illinois HB 4576 is close to passing! This bill would establish a Rare Disease Commission that would give patients – many of whom are too young […]
