Being Named State Ambassador
August 23, 2017
To help drive the efforts of the RareAction Network℠, NORD launched the State Ambassador Program. State Ambassadors are volunteers in a leadership position responsible for establishing and building a strong […]
NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act
July 13, 2017
Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the […]
NORD Issues Statement Opposing ‘MacArthur Amendment’, the Latest Version of the American Health Care Act
May 1, 2017
CALL TO ACTION: Congress could vote this week – please take a minute to phone your legislators and ask them to vote no (click) Washington, D.C., May 1, 2017—The National […]
