Pennsylvania

Christine McGarvey
Volunteer Community Ambassador
[email protected]

Pennsylvania Virtual Rare Disease Day
Friday, February 23, 2024 from 12:00 p.m. – 1:00 p.m.
This is a virtual event.

Please join patients, families, caregivers, medical professionals, and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Pennsylvania. There is no cost to attend this event. 

REGISTER HERE

The event is hosted by volunteers working with the National Organization for Rare Disorders (NORD) and its Rare Action Network, in honor of Rare Disease Day.

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Pennsylvania RareAction Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Pennsylvania.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Pennsylvania, we need you! Become active with the RareAction Network by joining and utilizing the resources available on this website to take action and create change.