Texas State Ambassador
What's Happening Now?
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Texas’ Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Texas.
Texas Rare Action Network Advocacy Luncheon took place on April 19, 2018 at the Law firm of Osha Liang LLP in Houston, Texas. There was a panel discussion on “How research incentives and healthcare coverage decisions impact patient health and access to new studies and drugs.”
On February 24, 2018 Texas Rare Action Network hosted a table at the Rare Disease Day event at Houston Health Museum with Texas State Ambassador, Deborah Skolaski.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Texas, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
David Mattax, Commissioner
Texas Department of Insurance
PO Box 149104
Austin, Texas 78714
Email for Assistance: ConsumerProtection@tdi.texas.gov
or 463-6515 in Austin
Consumer Assistance Program Email: ConsumerProtection@tdi.texas.gov