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Texas

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Deborah Skolaski
Texas State Ambassador
deborah.skolaski@rareaction.org

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Texas’ Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Texas.

Past Events

Texas Rare Action Network Advocacy Luncheon took place on April 19, 2018 at the Law firm of Osha Liang LLP in Houston, Texas. There was a panel discussion on “How research incentives and healthcare coverage decisions impact patient health and access to new studies and drugs.”

On February 24, 2018 Texas Rare Action Network hosted a table at the Rare Disease Day event at Houston Health Museum with Texas State Ambassador, Deborah Skolaski.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Texas, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

State Report Card_TX

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Emergency Relief Resources for Families with Rare Diseases in Texas

Hurricane Harvey left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be even more detrimental. Together, NORD staff worked with our Texas Rare Action Network State Ambassador, Debbie Skolaski to create the Texas Emergency Relief Resources packet, a list of emergency relief resources available for download that may be helpful for rare disease families in the Houston area.
 

David Mattax, Commissioner

Texas Department of Insurance
PO Box 149104
Austin, Texas 78714

512-463-6169

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: ConsumerProtection@tdi.texas.gov
1-800-252-3439
or 463-6515 in Austin

State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email: ConsumerProtection@tdi.texas.gov
1-800-252-3439

Show pride for rare in your state
Show pride for rare in your state

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